What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Tuesday November 24, 2009

Members in Need

Show stories in Members in Need
  • Our son alex

    Monday, August 31, 2009 | A Sad story

    Our son alex was born yesterday stillborn. The doctor said that there was nothing that josh or i could have done to prevent it from happening. that it just happened. it was just nature's way of saying that something was wrong with the baby.
    The doctor gave me some scripts for meds. He kept me in the hospital for a while to keep an eye on me, but said that since i was handling it so well that ...

    1 Recommendation

    24 Comments

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  • Rainy and Sad

    Saturday, May 3, 2008

    Hey All
    Well its been awhile since I wrote. Wednesday was a so so day I took a shower and went to the Sleep Study wed night. It went ok but my mask is making sore on my face. Wednesday at the sleep study I didn't sleep the best so Thursday I slept and made up for it. Thursday night I got a headache and still have one. Can't get rid of it. Friday was full of headache and homework. Had to ma...

    2 Recommendations

    18 Comments

  • Hot

    Monday, June 2, 2008

    Hey All
    Well today I call mortgage company and got everything straighten out. I wasn't a month behind it was late fees. Geez give me a break. I can pay late fees but don't tell me I'm late on a pyament. Stupid idiot. Whoops double negative. damn idiot. whoops cuss oh well sorry. I got a loan papers started with them maybe just maybe they will give us another loan to get money to finish...

    2 Recommendations

    17 Comments

  • Unsent Letter

    Sunday, January 25, 2009

    Dear Dad
    I love you Dad but I don't love the fact that you drink and it didn't help our family. It affected me and I decided that my family would not be affected by drinking so I guess that is one reason we don't come around as much as you want us to. I taught my kids that drinking can ruin a family and can affect you for a long time and so far my kids are into other things and not int...

    2 Recommendations

    16 Comments

  • PT,DS FRIENDS,HOT, TIRED,CUTE,SWIMMING,ACCIDENTS,LOVE

    Thursday, June 26, 2008 | An Anxious story

    Hey All
    Well its Thursday and my friend Daun is gone and Dustin the teenage boy is still here. I have alot to tell so I starte at the beginning. Monday morning the phone rings. Daun is at Weigels and ready to come to my house. The phone rings and Daun is on the wrong road so I talk her to the right  roads and all the way to the house. It was nice meeting her and we had a good time. Mom call a...

    1 Recommendation

    16 Comments

  • Sunny

    Friday, May 30, 2008 | A Frustrating story

    Hey All
    Well I got my homework after staying up til 1am on Thursday morning but I got it all done without a nap. I was sleepy but didn't take a nap I took more caffeinne.Thursday I played on the computer and got ready for physical therapy and group. I got half way there and my steering got tough. So I went to PT and afterward my physical therapist directed me to a car part shop so I went there...

    2 Recommendations

    15 Comments

  • Bad News?

    Thursday, April 3, 2008

    Hey All
    Well I thought everything was going good. But my brakes are bad on my van so I can't drive it.Anthony has to work and Joey is sick. So Ralph took me to the sleep study with his truck and pick me up in Joey's truck. I went to the sleep study and got jell in my hair and hook on wires all night it wasn't to bad. I got to watch tv and chill but had to get up at 515am. Ughhhhhhh Ral...

    2 Recommendations

    15 Comments

  • Space Cadetastic and a rant to end all rants.

    Thursday, July 24, 2008 | A Venting story

     There are really two parts to this journal one is my update and the other is to vent about my horrid new neighbors. I have been feeling REALLY out of it, and last night and today are no exceptions. Barry came over last night, we watched Batman to get ready for The Dark Knight this weekend.  Went out to Chilis for dinner and I ate too much, and felt sick.  I slept for crap last nig...

    1 Recommendation

    14 Comments

  • Journal Entry for May 1, 2008

    Thursday, May 1, 2008 | A Tragic story

    JM + JT
    Praised be Jesus Christ! Alleluia!
    I know many of us have expressed the fear of revealing who we are for fear that someone might find our sharings here and abuse the information.  With that said,  I am attaching an email that came from my sister, Melodie, today that brings to the fore each of our fears and makes them real.  To the point my beloved friends and support tha...

    2 Recommendations

    13 Comments

  • 8 months

    Sunday, June 15, 2008 | A Sad story

    It's been 8 months since I miscarried. I still think about it. I still think about the miscarriage. what could have i done better. Than again both my fiance and i were   under alot of stress. we were in the process of losin our apt.  It still hurts to go into walmart past the baby section and see all the baby clothes etc.
    I just want a baby so badly. will it ever happen.


    1 Recommendation

    13 Comments


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