What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Tuesday November 24, 2009

Sad Stories

  • Rainy and Sad

    Saturday, May 3, 2008

    Hey All
    Well its been awhile since I wrote. Wednesday was a so so day I took a shower and went to the Sleep Study wed night. It went ok but my mask is making sore on my face. Wednesday at the sleep study I didn't sleep the best so Thursday I slept and made up for it. Thursday night I got a headache and still have one. Can't get rid of it. Friday was full of headache and homework. Had to ma...

    2 Recommendations

    18 Comments

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  • Exausted beyond belief..Lily I mention you in this!

    Friday, May 23, 2008 | A Sad story

    1 Recommendation

    10 Comments

  • 8 months

    Sunday, June 15, 2008 | A Sad story

    It's been 8 months since I miscarried. I still think about it. I still think about the miscarriage. what could have i done better. Than again both my fiance and i were   under alot of stress. we were in the process of losin our apt.  It still hurts to go into walmart past the baby section and see all the baby clothes etc.
    I just want a baby so badly. will it ever happen.


    1 Recommendation

    13 Comments

  • depression

    Friday, August 22, 2008 | A Sad story

    hello to all,
    my name is beth and i am going through a very tough time right my husband and i are close
    to losing our home. we fell into a financial situation that was unforsean and now are struggleaning to try and save our home. i have been so afraid of what is to come in the furture for my family. I  went for so long hiding what was wrong untill just a few days ago. I guess i was at my break...

    1 Recommendation

    5 Comments

  • OB-LA-DI OB-LA-DA

    Sunday, June 14, 2009

     6/14/2009
    OB-LA-DI   OB-LA-DA
    Funny expression meaning life goes on.  A group you may remember made it famous.  The Beatles, on their famous White album.  particularly Sir Paul McCartney.  Though credited to Lennon/McCartney ; McCartney wrote it.  John Lennon thought it stink, stank, stunk.  That is putting it politely.  Lennon put it a sit&nbs...

    2 Recommendations

    6 Comments

  • old age

    Sunday, August 16, 2009 | A Sad story

    To me the hardest thing about growing old is seeing your dreams degenerate before your eyes.  Growing up we all have hopes and dreams of what are life will be like.  But very few people see all their dreams come to fruition.  Your ideal love is only in books or tacky soap operas.  Love is hard work.  It holds many hurts, tears  & disappointments.  Only ...

    1 Recommendation

    9 Comments

  • Our son alex

    Monday, August 31, 2009 | A Sad story

    Our son alex was born yesterday stillborn. The doctor said that there was nothing that josh or i could have done to prevent it from happening. that it just happened. it was just nature's way of saying that something was wrong with the baby.
    The doctor gave me some scripts for meds. He kept me in the hospital for a while to keep an eye on me, but said that since i was handling it so well that ...

    1 Recommendation

    24 Comments

  • Last Night

    Tuesday, September 1, 2009 | A Sad story

    Last evening I was sitting on the end of my bed in Phillip's & I's bedroom, "MY jail cell as I call it or maybe my Chosen Corner.  It is my Sancro  Sanatorium.  Phillip & his Mother are watching a ballgame in the living/dining room.  With an occasion squabble breaking the game. Sarah is working on her computer and darting around like a humming bird, trying...

    1 Recommendation

    4 Comments

  • It's been one week

    Sunday, September 6, 2009 | A Sad story

    It's been one week since we lost alex. I have been holding up pretty well so far.
    I have to go see the doctor in a few weeks. We will get the report back from the autopsy in 4-6 weeks.
    Josh and I are holding up pretty well. It has been hard for both of us. We have both been trying to keep busy as best as we can.

    1 Recommendation

    5 Comments

  • Alexander's closure ceremony

    Friday, September 11, 2009 | A Sad story

    Alexander's closure ceremony is on the 15th. Josh and I went tot he funeral home yesterday to set it up. I thought that it would be tough going there to arrange for our son to be buried. It was hard but i didn't burst into tears or anything in the funeral home.  we were able to get some things out of th storage unit. My husband's mom made a blanket that we are burying with o...

    1 Recommendation

    6 Comments


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