What is Neurofibromatosis
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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Tuesday November 24, 2009
Painful Stories
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Hey All
Didn't write yesterday was busy with a major headache and school work. I finally got it done and ready to go. The people in our group didn't show again but 3 out of 5 so we pick a artist and started doing a piece on him. The rest will just have to deal with it. I got a F on my collage of the soldiers and stuff because it wasn't my pics. So I found some of my pictures I too...
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Hey All
Well things didn't go as I plan I slept but didn't feel rested. Hopefully soon I will do a sleep study until then I have to feel tired. My doctor got blood work to check my thyroid I will call them tomorrow. I cancell my dentist appt because of a headache but it was more then a headache I didn't want to go. I wanted to stay in and be comfortable in my house. I don't know wh...2 Recommendations9 Comments -
Hey All
Well today suck as in having a headache. I slept late last night got up ate supper. On computer for awhile then went back to bed. Woke up at 6 this morning and it was hard to get back to sleep then I finally got up at 8 and felt like ughhhhhhh. Carpenters came and so did plumbers and I went back to bed and slept through all the noise and slept from 9 til about 12. Headache meds and playing...2 Recommendations7 Comments -
Hey All
Ralph woke me up to get the bill for the electircity to take and pay it. I wasn't sleeping but resting until then. Haven't been sleeping the best.My legs are hurting this morning and its cool but sunny outside and 63 degrees. They are painting the house and it looks good. The green is pretty. I will take pictures when they finish. We ran out of money so have refinancing we probably...2 Recommendations5 Comments -
Hey All
Well today is rain and pain. Monday I try to get some homework done but it didn't get done. Mom came up to visit but didn't stay for supper. Nikki came home from work. Anthony and Joey put up my dining romm table and we actually had supper at the table yeaaaaaaaaaaaa. We hadn't had supper at the table forever. We had a good supper, we had a roast that was roasted on the grill, ...2 Recommendations7 Comments -
Already taken night meds so bear with me if it's a little uneven in the sensical kind of way. I spent the rest of my day distracting myself with the Sims Castaway game which is so fun but...The magnititude of what the Dr told me, and what I looked up to explain the MRI results really hit me...I am in tears...sobbing, feeling more helpless then ever before and terrified of whats to come....1 Recommendation9 Comments
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WELL TODAY IS SUNDAY AND THE 29TH IS JUST AROUND THE CORNER AND I HAVE STILL NOT FOUND A PLACE TO LIVE OR EVEN A PLACE TO GO MY FRIEND THAT IS TRING TO HELP HAS BEEN OFF WORK SO I HAVE NOT SEEN HER. IM STILL HOPING THAT MABY SHE OR SOMEONE CAN HELP ME. I JUST DONT KNOW WHAT TO DO . I HAVE HAD NOTHING BUT BUT SLEEPLESS NIGHTS AND WHEN I DO SLEEP ALL I DO IS DREAM HORRIBLE DREAMS ABOUT WHAT IS IN S...1 Recommendation8 Comments
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As I face the one year anniversary of the loss of my son Kyle I feel the devastation all over again. I don't know what to do today to honor him. Everyone is waiting on me to decide, even my husband. I'm tired of making all of the decisions. I made all the decisions about his care from the day he was born, on the day he passed I decided to donate his organs to Gift of Life, I made all...1 Recommendation9 Comments
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Through our daily doubts & confusions,
We suffer under no loss of reason or delusions .
We fight a cruel, vicious war unending ,
With a sly, demonic enemy unbending.
Like the famous Spartans on the battle field.
We fight on, may fall but try not to yield.
We go on, we continue on as best we can,
Be it alone or ...3 Recommendations2 Comments -
Hello heaven.
It is me again.
Can you hear me?
Can you understand?
Do you see me?
Do you turn away from me?
Does my appearance scare you?
Do you find it a fine joke?
At the store I have people point.,
Children say 'Look at her bumps."
I have been asked is that catching?
What is that, anyway?
Besides the physical pain of NF,
There is the mental pain.
There is the shame.
Why I am not ...2 Recommendations8 Comments
