What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Recommendation: Dr. McKay McKinnon
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  Surgeon in Chicago
  City: Chicago
  Added by: mafrank   
  Post:
Dr. McKinnon is a fantastic reconstructive surgeon! I originally saw a televised special about him and decided to write him a letter. I had my first surgery with him in july of 08 and have another scheduled for june of 09. Only downside is that it takes him a while to get comfortable with his patients and their famlies.
7 Recommendations Add Your Recommendation
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Reminder: This is a support group for Neurofibromatosis. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Recommendation:
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Reply #1 - 02/13/09  11:14am
" i felt that from my head and neck ENT surgeon. At first she seemed not very friendly but after seeing her every week for about 5 months she became more friendly. Her department is ranked #2 in the country so very soon i'll get to see what the hype is about. I can't even to begin to tell everything they said in pre-op but they made sure they told me everythig "
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Reply #2 - 02/13/09  11:29am
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" Does the Dr in Chicago do the electro dessication "
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Reply #3 - 02/16/09  11:34am
" I don't think He does electro dessection... but i have never asked and he has never brought it up either. I think he deals with the more serious reconstructive issues. "
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Reply #4 - 02/16/09  9:02pm
" He doesn't do ED. He deals mostly with extensive plexiform neurofibromas "
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Reply #5 - 02/22/09  8:36pm
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" ok..thanks "
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Reply #6 - 02/28/09  9:22pm
" hi,
i was just wondering if i can get the address so i can write him about my nf. i really thank you if for this information i have nf not sure what stage im in. i have moles all most all over and do not want to get them on my face. plus im so tried of wearing long sleeves in the summer. "
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Reply #7 - 03/02/09  11:04am
" Dr McKinnon's contact info is below... he only has office hours on Mondays and Fridays. He has patients that fly in to see him from all over the US.


McKay McKinnon, M.D.
680 N. Lake Shore Dr.
Chicago, IL 60611

phone- (312) 335-9566 "

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