Discuss Neurofibromatosis with others who understand what you're going through. http://www.dailystrength.org/c/Neurofibromatosis/forum Tue, 01 Dec 2009 07:27:34 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://static.dailystrength.org/templates/images/promo/logo-round-rss.gif http://www.dailystrength.org http://www.dailystrength.org/c/Neurofibromatosis/forum/8522870-more-propolis-news I've heard a lot of people talking about propolis, but I'm not sure if I've heard anything about a p... hamby03 Sat, 28 Nov 2009 16:53:24 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8522739-abumpyroad A new family moved in this week. I was outside getting the mail. This kid walks up to me who is a... abumpyroad Sat, 28 Nov 2009 16:24:36 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8521819-tumor-optic-nerve Would like to chat to people who have NF 1 or 2 and who have had a tumor on the optic nerve. Would l... marty1980 Sat, 28 Nov 2009 12:15:21 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8513053-ed-remove Recently found this site, I am in my 50's NF runs in my family. I have never heard this term or mayb... AnnTee Thu, 26 Nov 2009 17:23:12 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8503916-im-back Well after a very eventful and busy past few months and with colder weather setting in I am finally ... NeuroSheath Wed, 25 Nov 2009 05:26:18 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8446510-small-bump-my-forehead there has been a small bump on my forehead and it's been there for about a month now. i showed my mo... recoveringcutter Tue, 17 Nov 2009 16:02:43 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8444431-neurofibroma My son is 9 months old and hasn't been officially diagnosed with nf, but he has the cafe au lait spo... shamysmom Tue, 17 Nov 2009 05:42:20 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8431456-add I have had NF all my life, but i think i am developing adult add, or i have just had it all along. ... igloogirl Sun, 15 Nov 2009 14:29:01 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8408816-chest-pains Not sure if it has anything to do with NF but here it goes. I have frequent chest pains, but alwa... Lennin Thu, 12 Nov 2009 03:43:00 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8394336-pheochromocytoma Just wondering if any one here has been diagonesed with pheochromocytoma culpy73 Tue, 10 Nov 2009 12:48:36 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8364589-mid-brain-tectum-tumor We just got back from UCDAVIS in sacramento. Our little girls tumor is growing. Its in the brain ste... rnlcka Fri, 06 Nov 2009 00:11:00 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8325470-inspirational-child-nf-carries I wanted to share this story with all of you as many of you are inspirational to me. The Olympic... rhubarbtime Sat, 31 Oct 2009 18:08:20 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8323094-tumor I saw my dermatologist today for my migraines but he found something on the back of my head. he doe... rose77 Sat, 31 Oct 2009 05:19:37 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8307888-freezing-them-off Not sure how to start so. About twenty years ago, a doctor I knew said, he could freeze of the bu... STUART2008 Thu, 29 Oct 2009 08:44:06 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8286895-having-surgery-thrusday I have had fibromas removed before. Iam just a little nervous. It has been so long ago (1999) Deep b... bbeauty25 Mon, 26 Oct 2009 20:40:57 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8282377-public-transport As you may know from my profile, i have nf pretty bad, with plenty of bumps all over. I was wond... Lennin Mon, 26 Oct 2009 09:36:37 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8229611-monster I feel like a monster. I cant wear what I want, My body aches all over and I can not find a doctor t... Monque Mon, 19 Oct 2009 03:01:08 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8227989-taste Oh god Im going crazy! My son Oren has NF1 with parietal lobe hamartomas and seizures. The problem r... OrensMom Sun, 18 Oct 2009 22:46:18 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8217578-passed-away Wanted to let everyone know my 18 month old passed away thrusday around 3pm jibo Sat, 17 Oct 2009 01:48:30 +0100 http://www.dailystrength.org/c/Neurofibromatosis/forum/8197380-taking-c-hance-here I will be running my fourth marathon on Sunday to raise money for NF research. To be honest, I stin... Marah Wed, 14 Oct 2009 14:02:08 +0100