What is Neurofibromatosis
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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MID BRAIN TECTUM TUMOR
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We just got back from UCDAVIS in sacramento. Our little girls tumor is growing. Its in the brain stem, very diffuclt to get to. Has anybody gone through this? please talk to me I need anyones support thatknow what we are going through.
Posted on 11/05/09, 07:11 pm |
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I myself actually have 2 tumors located in my brain stem, both of them of which being unteatable and inoperable. Only the one has increased in size since first being found 9 years ago. They recently now have founf a 3rd in my left side of my brian of which I need to go for additional testing. 
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