What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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I saw my dermatologist today for my migraines but he found something on the back of my head. he doesn't think it is serious because it is not on the brain. It did not show up on the cat scan I had. He wants to me to see my dermatologist because he thinks it is just a nf tumor. And he said he is not to concerned because it did not show up on the cat scan and not on the brain. I am a bit nervous anyway. This is the first time a major problem would be happening for me. I have only had to deal with the tumors being removed from arms and legs nothing to bad either just cosmetic reasons or if it was an inside one it was just a small one. I am going to make an appointment on Monday with the dermatologist I use to remove my tumors I really hope it is nothing. Like I said I am just a bit scared
Posted on 10/31/09, 01:10 am
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Reply #11 - 11/23/09  11:15pm
" I tried topamax it didn't work and it just made me really off. My dr did say they call it dopamax because it kind of makes you out of it. I keeped forgetting things. The medication I am on now does that to an extent, but not as bad. I am on depokot and elavile. "

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