What is Neurofibromatosis
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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Monster
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I feel like a monster. I cant wear what I want, My body aches all over and I can not find a doctor that would see me. I can not afford these Neurologist or Dermatologist. What other why can I go by just to get seen by a doctor. I need MRI's, Cat Scan's, and other treatment. Please help!!!!!
Posted on 10/18/09, 11:10 pm |
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Do you have a regular doctor. I actually have an easier time getting my GP to remove problem tumors than an actual dermotologist. Most doctors are dicks. Don't give up, keep looking. 
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And you are NOT a monster. The people who point, stare and make rude comments are the monsters. The doctors who fail to understand how devistating being covered with bumps is, they are also monsters.
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Please try to get on a group plan of insurance (like at your job)It has been my experience when i didn;t have insurance and needed individual coverage I got turned down by 2 insurance companies b/c of my NF. Now,I am with a group plan. If you are with a group plan they are more likely to accept you no matter what. You must do that. It makes it SO MUCH easier. Good luck.
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