Neurofibromatosis Support Group

I am so sorry to hear that. May he rest in peace.

god bless my heart goed out to you and your family

The hardest thing any parent can go through. Wish there was something better to say than Im sorry.

May God be with you & family.I am so very sorry for your lose!

I am so sorry to hear that. I will keep you in my prayers.

So sorry to hear about your son. I lost my 15 month old son Kyle on 2-3-08. He also was born with NF1 which was genetic mutation. He had a plexiform neurofibroma around his brain stem and was very extensive. I understand your pain and there really are no word's I can say that will make you feel better. Just know that if you ever want to talk I will listen.

So sorry for your loss.

i wanted to thank everyone for their care and compassion.

i am so sorry for your loss, i know there are no words but my thoughts and prayers are for you.

OMG....I am so sorry for your lost.....stay strong....my prayers are with you and ur family ....I know when my brother passed away 2 years ago...people told me.....things like.... he's in a better place....and that his suffering is now over....but that doesn't make the pain feel any less hurtfull.....it still hurts.....Gob Bless you....