What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Memory
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I have a question, does anyone else with nf-1
have memory issues? If i get side tracked i amy forget what i need todo.

Because my mri showed a leison on my fronal lobe
i've been determened to have frontal temeral dementia. Which i believe is wrong. I am now forced to be waited on and attended too. I may sound crazy but i want to do for myself and not be wqited on hand and foot. I am here for mental stimulation. However I feel that being around people that are 80 and older and for the most part in wheel chairs. ios not healthy for my brain. at 52 I get around faster than the staff.

I feel that most Neurologistis do not have a
handle on nf unless they speacilze in that feild. Thanks for your help and input.

Eddie
Posted on 06/23/09, 10:06 am
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Reply #1 - 06/23/09  3:09pm
" I do sometimes. I find that reading helps. Remind your self periodically or make a list. I know some of it may be due to your FTD. I am still praying for you. "
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Reply #2 - 06/23/09  3:48pm
" Thanks. I just feel its nf and not FTD. I co nuts in the fact that i am being foced to be waited on LOL.


Eddie "
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Reply #3 - 06/23/09  8:18pm
" Actually NF ad ADD go hnd in had sometimes. It probably has alot to do with that. My memory isnn't bad I just start doing one thing see something else that catches my eye and forget about the first. "
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Reply #4 - 06/25/09  10:25am
" there are tons of things you can do to help... things like doing cross-word puzzles, word searches, math/ reasoning things or even playin "memory" (that card game we all used to play as kids) "
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Reply #5 - 06/25/09  10:40am
" Thanks I do all that. I feel that i dont have ftd but its my nf-1 I get around faster than the Staffin this nursing home.

eddie "
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Reply #6 - 06/25/09  3:15pm
" If you don't want to go DON'T!!! You are healthy...There are many things you can do to improve your memory like mafrank said. Keep the faith on try DAILY to improve your memory. Hope is not lost, good luck! "
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Reply #7 - 06/25/09  4:08pm
" Many thanks

Eddie "
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