What is Neurofibromatosis
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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Having children if you have NF. Why?
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I’m not asking this question to be rude, mean, or to persecute the people who have, I’ve just always wondered why someone who knows they have NF would choose to have children.
We’re all on this message board for one reason; because we, or someone we know has NF. We all know that although life can be great, NF can make life a living hell. NF causes things like tumors, bumps, disfigurement, malformations, pain, embarrassment and countless other issues. If you hate NF, and the way it has affected your body and your life, then why would you choose to subject another living creature to the same torture you endure every day of your life? I realize that many people, for one reason or another, actually want to have children, but isn’t it being selfish to put your want to have children ahead of the need that child has for a disease free, pain free, humiliation free life? I also feel this dirties the gene pool and makes the problem worse. If hungry people breed, they just create more hungry people and make the problem worse. I know we can’t get rid of NF completely, because sometimes it’s a case of gene mutation, but shouldn’t we take measures to get rid of NF, but reducing the number of people who are born with NF? As I stated in the beginning of my post, I’m not trying to anger anyone, or be rude, I’ve just been curious about this for a while. I’ve seen other people make posts that hint at the fact that they don’t think NF should be bread, so I figured I would start a discussion. Posted on 02/11/09, 01:02 pm |
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My mother never had any bumps until after she had children. something about the hormonal change that a women goes through during pregency 
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hi there!
I am a 32 year old male, with NF.. If i ever found someone to spend my life with, I would love to have kids, but I wouldn't want to have that kid go threw the ....things i went threw growing up, my life was rough because of the NF i was different and never fit in,, I still wouldn't want to take that right away from any woman i would settle down with (not sure how to word that) I really would love to have akid, but would refrain from it. not fair to him/her or to the woman i would settle with.
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I have 3 children and they all have NF. God blessed me with kids, It is not all that bad having NF. It's the people in this world that are butt heads. They hate what they fear and fear what they hate. Yeah it's a shame that people treat others like me so wrong. It's like they think they can catch it or we cant do anything like they can. Having NF is difficult enough. But dealing with dumb *** people with closed mind is hard enough. Plus doctors that dont understand squat that deals with this type of illness make you even madder. But in the long run. I still can say I got blessed in some way. I got the chance to have children. God's Gift to me. Cause there the ones who shows me, there mother unconditional Love!!
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my thinking having kids when have nf is maybee for some kinds of nf possibell, i have schwannomatosis and have a lot of tumors on my nerves, some day i cant walk, and have nerve pain, that i don"t want to give to my wirst annemy, so why i give it to kids???
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how can you say nf is not all that bad? i'm 42 yrs old i just found out i need more surgery to remove more tumors frm my spine. i made the decision when i was 17 not to have kids and i'm glad i did yes you can take care of them if they are born with nf but what if something happens to you? who takes care of them than? maybe your case is'nt bad but any child you have could be worse off than you . how can you guys say it's not all bad. i was adopted and my birth father had nf i have never met them but i ever do i'm going to tell them how selfish they were. first they have a baby knowing the risks than they give her up for adoption because she has it. don't get me wrong giving me up was a gift because i have a wonderful caring family but that does'nt change the fact that i have this horrible disorder that has taken over my life. i would never ever put a child of mine through what i have had to encounter.
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i dont think you should tell people not to have kids just because they have NF as Marah said everybody takes a risk when having children with any birth defect, i was the first in my family to get it, so a gentic mutataion for me, as mine as been very mild I hope to start a family in the near future, Congrats Rebecca 20091 i am very happy for you & your husband
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