What is Neurofibromatosis
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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Bumps make me miserable
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I have a few bumps on my scalp, Today I was brushng my hair and noticed that one was very sore. It kinda has a scab on it like it was bleeding. Does anyone else have them in the scalp. I absolutely hate everything about NF.
I know I am not ugly, but when you go out in public and people go OMG whats that on your neck?? Why the heck cant people keep their comments to themselves..?Then she ask you know they arent very attractive. what the hell is wrong with people. Does anyone else think that you are unattractive because of the bumps and brown spots??even when your boyfriend/girlfriend they say oh your pretty, or your hot. Oh i love you just the way you are, Dont get me wrong My boyfriend always says to me your hot, and all. but in the beack of my mind i am always thinkin gosh these bums really make me ugly. I guess I kinda got a complex from this. Posted on 09/03/08, 01:09 am |
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Amen! Girl. I hear everything your saying. I have them all over my body and neck and head. I am a male so i can keep my hair short. But people are so rude. For instance i'm in a moterizedwheelchair now. I have had problems walken for the last 9 yrs and the last 6 i've used a chair to get around. But crutches around the house.
When i'm outside and going down the street or in the store even with a 6ft neon orange flag people still don't see me. And when i'm in the stores and have to stand out of my chair to get something off the shelf i get looks like i did something bad. I've heard people say " Why do u need that chair?" or "You don't need that chair". You just have to ignore them, Even though when i was married my wife couldn't stand the feal of the tumors. ( So i'll leave it at that & you can imagine what didn't happen. But i'm getting a new chair soon and i'm putting a AirHorn on it and i'm not jokeing. It might be just the ones in the can but i'm going to use it u can bet on that. People stare or give me looks of sympathey when i'm in my chair but i just smile and say " HI". The NF is eaten up my body and i can't let it get me down . So i always say Happy happy joy joy. 
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