Neurofibromatosis Advice - DailyStrength Get advice about Neurofibromatosis from people who have experience with it and understand what you're going through. http://www.dailystrength.org/c/Neurofibromatosis/advice Tue, 24 Nov 2009 04:22:18 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://static.dailystrength.org/templates/images/promo/logo-round-rss.gif DailyStrength.org http://www.dailystrength.org What should i expect? http://www.dailystrength.org/c/Neurofibromatosis/advice/7640826-should-i-expect im 20 and have known that i have nf for a few years, but my parents have known since i was a few mon... allison412 Fri, 31 Jul 2009 13:52:25 +0100 Depression and Mood Swings http://www.dailystrength.org/c/Neurofibromatosis/advice/7633444-depression-and-mood-swings I was wondering, I have been trying to treat my mood swings and depression for a long time, I never ... zeckc775 Thu, 30 Jul 2009 16:41:56 +0100 Friend was just diagnosed.... http://www.dailystrength.org/c/Neurofibromatosis/advice/7490501-friend-just-diagnosed I really dont know anything about Neurofibromatosis. One of my best childhood friends (and my neighb... Mindy645 Sun, 12 Jul 2009 19:36:46 +0100 which doctor http://www.dailystrength.org/c/Neurofibromatosis/advice/6876297-which-doctor I have larger bumps on my head arms back chest,i want some removed but what type of doctor do i go s... ThisIsWhoIAm Sun, 26 Apr 2009 02:54:07 +0100 do i get my daughter tested or not please help? http://www.dailystrength.org/c/Neurofibromatosis/advice/6670942-do-i-get-my-daughter I am currently waiting for a new test to come back that will diagnose schwannomatosis which both my ... magsd Sun, 29 Mar 2009 13:49:43 +0100 going to be single soon http://www.dailystrength.org/c/Neurofibromatosis/advice/6635425-going-single-soon I am going through a divorce, and I do worry and think about something I have not had to worry about... rose77 Tue, 24 Mar 2009 18:45:51 +0100 Update on diagnosis http://www.dailystrength.org/c/Neurofibromatosis/advice/6602762-update-diagnosis Hi all, especially my site friends. Apologies for not keeping in touch but in all honesty i've been... bigtoe2 Fri, 20 Mar 2009 01:25:20 +0100 Abnormal Mammogram http://www.dailystrength.org/c/Neurofibromatosis/advice/6506649-abnormal-mammogram Has anyone else ever had an abnormal mammogram? I had one yesterday, abnormal. Now I have to go ba... Marah Fri, 06 Mar 2009 21:25:17 +0100 Nf1 - Neurofibroma http://www.dailystrength.org/c/Neurofibromatosis/advice/6432678-nf1-neurofibroma Hi ppl.. I'm a 24yr old girl who has nf1. Ever since I turned 21 I've been noticed the growth of neu... cc28 Wed, 25 Feb 2009 01:12:58 +0100 Neurofibromas http://www.dailystrength.org/c/Neurofibromatosis/advice/6412123-neurofibromas Hi everyone, just after some advice. I spent all yesterday in hospital with my 2yr old as he has b... madmaxgirl Sun, 22 Feb 2009 10:50:28 +0100 Need advise on NF http://www.dailystrength.org/c/Neurofibromatosis/advice/6389913-need-advise-nf My daughter is 7 months old and recently got diagnosed with NF. She has the cafe auleit spots and an... minascamilla Thu, 19 Feb 2009 07:00:03 +0100 My 8 year old son has nf1 and not coping well. http://www.dailystrength.org/c/Neurofibromatosis/advice/5429104-my-8-year-old-son Hi All, I haven't been on here in awhile. Glad to be back. My son is 8 years old and has just had ... JazzBarrow Mon, 17 Nov 2008 02:48:12 +0100 Is this a fibroma? Could my sis have NF? http://www.dailystrength.org/c/Neurofibromatosis/advice/5355572-fibroma-could I'm going to put some photos in the my photos section my main concern is neurofibromatosis, because ... qwertyuiop123 Mon, 10 Nov 2008 04:12:01 +0100 A Good doctor near me http://www.dailystrength.org/c/Neurofibromatosis/advice/4954880-good-doctor-near-me I live in Merrillville IN near Gary In I would like to find a doctor who knows about and helps peopl... robsmit Sat, 04 Oct 2008 15:01:24 +0100 new to http://www.dailystrength.org/c/Neurofibromatosis/advice/4632359-new Where do I begin? First let me take a moment and introduce myself. My name is Theresa and I am 22 yr... jojosgirl Fri, 05 Sep 2008 06:37:57 +0100 Help finding new nf doctors http://www.dailystrength.org/c/Neurofibromatosis/advice/4518786-help-finding-new-nf-doctors I have just moved to Virgina Beach Norfolk area and i am seeking advice for a new MD doctor and othe... cookieB40 Mon, 25 Aug 2008 22:16:42 +0100 Tales from the lieing stethascope http://www.dailystrength.org/c/Neurofibromatosis/advice/4492105-tales-lieing-stethascope last week the doctors were suppose talk with me about my surgery nope. she's talking with the docto... sloowburn Sat, 23 Aug 2008 07:38:58 +0100 has anyone went for surgery? http://www.dailystrength.org/c/Neurofibromatosis/advice/4147691-has-anyone-went-surgery I'm getting ready to go for surgery in the near future. I've developed a very large tumor on the bac... sloowburn Tue, 22 Jul 2008 17:24:34 +0100 phakomatosis http://www.dailystrength.org/c/Neurofibromatosis/advice/3983352-phakomatosis my son is almost 8yo. he was diagnosed with NF1 at age 2. he has an optic glioma and parietal lobe h... OrensMom Mon, 07 Jul 2008 20:12:32 +0100 What to expect? http://www.dailystrength.org/c/Neurofibromatosis/advice/3960799-expect My daughter is 6 months old. We discovered several cafe au lait spots at around 3 months of age. A... Kari6576 Sat, 05 Jul 2008 16:48:44 +0100