What is Neurofibromatosis
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
Join Now
|
A Good doctor near me
|
Watch this |
| View More Posts Ignore |
I live in Merrillville IN near Gary In I would like to find a doctor who knows about and helps people with neurofibromatosis. thanks in advance to anyone that can help me
Posted on 10/04/08, 11:10 am |
| 5 Replies | Add Your Advice |
| View More Posts Ignore |
I’m not sure how it works in your area but I would start with your primary care physican (regular doctor) to see if he can do any research on this and find a specialist. Other wise you can do a Google search on NF in your area or start calling local hospitals but I would think that your primary would have some knowledge of this. I’m going through this myself right now. Good luck and hope things workout.
Kurt 
|
|
|
|
||
| View More Posts Ignore |
Do you want to travel?
In Dallas there is Dr. Edward Melmed (thanks jools for telling us about him) In Chicago there is doc call mckay.. I think in new york - -there is dr. weingberg
|
|
|
|
||
| View More Posts Ignore |
If you're looking for NF clinics, this is what I found..
Indiana University/Riley Children's Hospital Indianapolis, IN Midwest Ear Institute Multiple locations, IN St. Vincents Children's Hospital Indianapolis, IN Not sure how far they are from you... I am here in Australia :-) Google them for phone #s, they maybe able to find a doctor closer to you.
|
|
|
|
||
| View More Posts Ignore |
there is a great surgeon in Chicago!
|
|
|
|
||
| View More Posts Ignore |
iowa city has a good genetics department. monday my tissue expander surgery went pretty well with Ear nose and throat
|
|
|
|
||
| Add Your Advice |
