What is Narcolepsy

The main characteristic of narcolepsy is overwhelming excessive daytime sleepiness (EDS), even after adequate nighttime sleep. A person with narcolepsy is likely to become drowsy o...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Discussion:
Narcolepsy & H1N1
Watch this 
View More Posts Ignore
Just getting over the regular flu, but my General Doctor wanted me to take the Tamiflu to help aid in my recovery. Tamiflu is a perscription medication for the flu and has been given out to high risk patients that are experiencing the flu to help avoid the H1N1. In Canada, people with neorological brain disorders such as Narcolepsy are considered high risk for the H1N1 flu. Does anyone know why we would be considered high risk? I'm thinking it's because of our immune system.
Posted on 11/08/09, 11:11 pm
4 Replies Add Your Reply
Reminder: This is a support group for Narcolepsy. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 11/09/09  4:53am
" oh not somet else....sigh, like you say i bet its because if the immune system...interesting so that means that we are at risk at getting alot of things!!!!! "
View More Posts Ignore
Reply #2 - 11/09/09  8:46am
" Just like with the "regular" flu, H1N1 is far more dangerous to people with underlying health conditions, especially those of the circulatory and respiratory systems, and those with compromised immune systems.

The virus is dangerous to those with compromised immune systems for 2 major reasons that work together; the first being that if one's immune system is not up to par it cannot fight off the virus properly, thus making the symptoms of the flu itself worse and more dangerous, and the second being the potential for secondary infection while the body is fighting off the first.

With N, I think the concern is far from proven valid, but is more about what general observation is showing us. There is a growing belief among doctors that N is an autoimmune disorder, thus we have compromised immune systems. Also, more and more PWN are being found to have multiple AI disorders such as fibromyalgia, lupus, etc., which would compromise the immune system further, and many of us also have heart and lung conditions, even though they don't show up until much later or are discovered "by mistake."

So even though you may not have been diagnosed with anything else and N certainly doesn't feel like anything that would be a problem in and of itself, I can understand the doctor's desire to be proactive. As far as other neurological disorders, I can't say. There are many, and the CNS controls just about everything in the body, so overall, I'd probably want to be protected if there was any chance my "mainframe" was going to crash at a crucial moment. "
View More Posts Ignore
Reply #3 - 11/09/09  8:50am
" http://www.livingrheum.com/2009/07...

This mentions it but doesn't explain why...I will keep looking...obviously those taking immune suppressants ( like those with MS) would be at risk...and it would seem prudent to avoid any extra strain on our bodies' poor little immune systems...I will keep searching for why "neurological" diseases are considered a particular risk. I did mention in other posts that exposure to strep virus is expected as a possible trigger for n...I wouldn't take my chances with other viruses just based on that. "
View More Posts Ignore
Reply #4 - 11/09/09  8:54am
" http://autoimmunedisease.suite101....

This one does explain things better. N isn't listed but remember N has just been categorized as autoimmune...and is as common as MS "

Add Your Reply
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil