What is Narcolepsy
The main characteristic of narcolepsy is overwhelming excessive daytime sleepiness (EDS), even after adequate nighttime sleep. A person with narcolepsy is likely to become drowsy o...
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Really Stupid Move
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I'm up at 1:30 in the morning because I did what is probably the single most stupid (not to mention dangerous) thing I've done in a long time. I'm sharing this here because I didn't realize just how stupid it was until I just woke up from a dead sleep choking, and want to pass this on so no one else makes a similar mistake, but it was definitely a learning experience for me - and a wake up call (literally).
About a month ago I began Xyrem (which, by the way, appears to be working very well), and each night while I am waiting for it to "kick in", I lay in bed and check my email. I also have Sleep Apnea, which I discovered tonight is a very bad combination. About 15 minutes ago, I woke up from a dead sleep choking because I didn't realize that the Xyrem subtly kicked in tonight and I fell asleep on my back before I put my CPAP mask on, luckily I am used to emergency situations and didn't panic, but when the initial shock freaked me out enough that I am wide awake and had to tell someone. First, this is a friendly reminder of: DON'T LET THIS HAPPEN TO YOU!!!!!!! Second, am I the only one or has anyone else ever done anything similar? p.s. I am sitting up typing this and can't believe I actually did that!!!!! Posted on 11/05/09, 01:11 am |
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i'm not on xyrem anymore but at least once a week i forget or fallasleep before i put my c-crap mask on and wake up the same way gasping for air. it's my own fault, that should be the first thing i do each nite. 
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Once after I took the second dose I forgot to get the mask back on I guess, and woke up gasping. Only one time but that was enough.
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I dont take that med but.......
Before I knew I had cataplexy I had a bad attack. I was talking to my doctor trying to tell him something was wrong with me. I was sitting in front of the computer and fell forward, crimped my neck and chocked to death. The doctor heard this and called 911. when the paramedics got there they had to get me back to breathing again. Very scarey but taught me that when I am feeling an attack coming on to get myself in a position where I cant cut off my airway.
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