What is Narcolepsy

The main characteristic of narcolepsy is overwhelming excessive daytime sleepiness (EDS), even after adequate nighttime sleep. A person with narcolepsy is likely to become drowsy o...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Discussion:
new to narcolepsy
Watch this 
View More Posts Ignore
I am newly diagnosed w narcolepsy--diagnosed through sleepstudy w mlst test-am taking Nuvigil 150 daily (4th day) since July I have passed out (I Thot) 450+ times--now I know I was falling asleep! Often while in the bathroom. My biggest question is will the med stop all instances of going out? or just reduce them? 11/1 was a great day--went to church and was higher than a kite--one episode all day--and that is after getting just over 2 hours of sleep! Since then I have "coe back to earth--4 episodes yesterday and 1 so far today anybody w info about the overall use of nuvigil please HELP!!--also, my wife saw something that says can only take for 12 weeks--what happens then?
Posted on 11/03/09, 12:11 pm
5 Replies Add Your Reply
Reminder: This is a support group for Narcolepsy. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 11/03/09  8:48pm
" sorry but i can't help u on this, but there area lot of other peeps can help u! good luck "
View More Posts Ignore
Reply #2 - 11/03/09  9:50pm
" First, I want to welcome Fellow Ohioan!
I don't do nuvigil...haven't heard anything about the 12 week thing before. With those kinds of cats I am surprised you aren't on Xyrem. "
View More Posts Ignore
Reply #3 - 11/03/09  10:31pm
" nothing ever goes away for good,meds or no meds.never heard of the 12week thing.
nuvigil is just a better version of provigil.i took the pro for about 2yrs or so
thought it was lame. just my oppion.
welcome and goodluck "
View More Posts Ignore
Reply #4 - 11/04/09  8:30am
" thanks for the responsesI am not on Xyrem doue to heart issues and doctor doesn't like all of the side-effects--I slept good last night-but eyes are heavy this morning "
View More Posts Ignore
Reply #5 - 11/04/09  1:42pm
" Newly diagnosed also (N but no C), just started Nuvigil about two months ago....started with 1 daily but increased to two...now take 150 mg when I first wake up and another 150 mg about 8 hrs later. Have been happy with it thus far but some days I still have EDS attacks...excessive daytime sleepiness...or microsleeps. Makes me wonder sometimes if I forgot a pill, but I know I didn't. But overall, pretty happy with meds. Was hoping for a weight loss side effect...no such luck. Good luck to you - hope this site helps you; it sure has helped me to be able to read posts by other "narcs"! "

Add Your Reply
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil