What is Narcolepsy

The main characteristic of narcolepsy is overwhelming excessive daytime sleepiness (EDS), even after adequate nighttime sleep. A person with narcolepsy is likely to become drowsy o...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Discussion:
what were you like before getting narcolepsy and w
Watch this 
View More Posts Ignore
what were you like before getting narcolepsy and what are you like now?
before i got narcolepsy about 10 years ago , i used to be an active , happy person , enjoyed being a mum , i was always keeping my kids amused at doing something, and i loved to do house work lol , and now im a shadow of who i used to be , i have no life outside my home , i dont work , i very rarely do anything with my kids and house work is such a chore , if i go food shopping it realy drains me physicaly and mentaly , narcolepsy has ruined my life , i find it hard to cope with , but i gotta get used to it some how because its with me for the rest of my life , people dont understand the effects of narcolepsy has on not just the person who has it but them close to them ,like kids, and partners, my kids have suffered because of my illness , and they shouldnt off , but narcolepsy isnt a illness that doctors come across everyday ,
Posted on 07/04/09, 03:07 pm
12 Replies | Most Recent Add Your Reply
Reminder: This is a support group for Narcolepsy. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #11 - 07/07/09  2:55am
" He was in high school had a couple of friends. Had a life. On the waiting list for drivers training. "
View More Posts Ignore
Reply #12 - 07/09/09  1:51am
" just wanted to answer hannah to say ditto - sorry i havent got energy for more that tha at moment "

First | Previous | Page: 1 2 | Next | Most Recent Add Your Reply
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil