Narcolepsy Support Group

I take 60mg of Adderall XR (very similar to dex) and 30-45mg of Dexodrine every day. So I guess that's 90-105mg of stimulants - and the nap-attacks came back weeks ago! Still waiting for my next appt to switch to something else.

what is the dextroamphetamine suppose to do and has it helped

It's am amphetamine to fight sleepiness

littleduck,

If I were near Alberta, I would go see your doctor. They are BSing me here, saying om on a high dosage.

i take dex 5mg 8 times a day , that is not enough 4 me either because im still like a corpse with a pulse, the down side to them is that they tend to make my eyes go glazy and it looks like im of me head :( it annoys me cause people look at me as if im a druggy , i get so paranoid about it ,

Okay, you made me curious. I called my pharmasist and asked what the MAXIMUM recommeneded doses were for amphetamines:

Only taking Dextroamphetamine - 60mg a day.
Only taking Adderall XR - 40mg a day.

Yet, I'm taking 45 of dex AND 60 of adderall. This doesn't seem very safe...

Duck-

If your doc gives you and explaination, if you don't mind, shoot me a message.

Thx.

Tim

I take 40mg. of Addarrall XR aday in 2 doses. I take a 25mg in the morning between 6:30 and 7, and then I take a 15mg at noon. Most days does okay, but by 7pm I am useless. I am wanting something to help me thru at least 9pm, but if I take the noon dose @ 2pm, I am sleeping @ work after lunch.

Hey Tim - just saw my sleep DR a few days ago and shared my concerns about the HUGE amount of stimulants I'm on. He said there's a few reasons he thought they were my best option.
First - I'm healthy (perfect blood pressure, no smoking, no drinking)
Second - my EDS is the most sever he's ever seen - so bad that I'm a danger to myself (I've fallen asleep walking down stairs and nearly killed myself, and almost lost my thumb when I fell asleep cutting veggies)
Third - my body adapts to drugs ridiculously fast and (thankfully) they don't have any side-effects for me.

They worked for the first 4 or 5 weeks, and then the nap-attacks slowly started coming back. Now, I spend about 30-40% of my day asleep or in automatic behavior. I can take the meds and still fall asleep 5 minutes later.
My options are to take MORE stimulants or try Xyrem - so I'll start taking Xyrem in a few weeks (the only pharmacy that can sell it is 3 hours away) In the meantime, he's added another amphetamine to the mix. My new combo:

7am - 60mg Adderall XR
11am - 30mg Dexedrine (Spansule)
1pm - 15mg Dexedrine (Spansule)
Anytime - 10-20mg Dexedrine

He said when I feel the nap-attacks coming, the dexedrine should act immediately to stop them.

Hope your Dr finds something that works for you :)