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Discussion:
Perpetuating factors
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I've been re-reading all about 'perpetuating factors' as wriiten by Paul Ingraham on the www.saveyourself.ca website that I can't recommend strongly enough.

Anyway, maybe because I'm really working on 'accepting' how bad my condition is now, how 'disabled' I am at the moment, I read the section on the 'perpetuating factors' section and it really, really hit home:

-Trigger points come back because of the same reasons that they formed in the first place!

**It's so simple I forget it too often. Reading it back, I can see how I ended up in such a state as I did, but then hindsight is wonderful, isn't it?

His other comments include:
"Typical perpetuators are nutritional and hormone deficiencies, other sourcs of pain (such as a slow healing injury), muscle fatigue or stagnation or alternating between them (weekend warriorism), awkward working postures and positions, sleep deprivation, and so on."

**I was probably all of those things going into 2011 and it was a recipe for a disaster I'm still fighting against. If only....

Apparently, "Roughly 20% of people who come to see me [he's a massage therapist] with a straightforward case of trigger point pain are the “lucky ones” who get quick and lasting relief of more than 6 months. Of those, perhaps one third will never feel that pain again, or they will self-treat it so effectively that it is never much more than an annoyance. The remainder will get the pain again, probably within a year or two … because of perpetuating factors."

**I knew I was storing up 'things' to sort out, but I guess I didn't expect the damage that was done putting off sorting out the perpetuating factors.

"Perpetuating factors are numerous and often require special knowledge to recognize their importance to trigger points. They are commonly overlooked and neglected. In patients with chronic myofascial pain syndrome, attention to perpetuating factors often spells the difference between successful and failed therapy."

**So true, I didn't realise how important my working conditions were in relation to recovering from the mps. And it crept up on me over 2 years and now I can't work, am taking rediculously high numbers of medications, fighting to find my way back to some form of 'normalacy'. If only, if only...

**I really thought I could be clever about it all, and 'manage' my way through my work crisis, as it had a set end point that afterwards I thought I could then rearrange my life to support getting well again. I was so wrong, so very very wrong. And now I'm paying the price of it all.

**Out of 9 'most common' perpetuating factors I had 7 all working against me at the same time. Is it any wonder my condition deteriorated so deeply so quickly? I guess not. On this occasion a little bit of knowledge didn't go a long way...it nearly destroyed me. Because I came up with countless creative ways to manage day to day pain and stay at work and in the end I cracked and crumbled and my contribution to the work project seems to have been ignored completely.

It's a hard fight to accept what happened, how so much of it comes back to my actions, which combined with a shockingly difficult work environment to end my career as a health professional and leave me with a 'what now?' headache. But it's step 1 of Dr painclinic.org 's 12 steps to coping with pain.

It's all exhausting! Might have to give myself a little reward for getting this far without imploding and I have a gift token from someone that will do the job nicely! I might take a day off of this misery and hit the shops tomorrow (or I might spend the day in a drug-induced haze, we'll see how it turns out).
Posted on 07/16/12, 05:44 pm
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Reply #1 - 07/16/12  7:09pm
" Pumpkin, sometimes I can't help but wonder if it's the "benzos" causing us all this grief. Both of us have hit them pretty heavy in our lives do to anxiety. Also the Klonopin helped me be super woman. When you hit tolerance with benzos (which only takes a couple weeks use) they can create a lot of problems.
I've been reducing for so long and every time I go lower the muscle pain and tension is beyond crazy. My mom and I were talking about that this morning. She wanted me to ask the group about certain meds to see if they have something to do with it.
I can put my finger on Klonopin and Neurontin for me. Neurontin was the worst withdrawl, even worse than the Klonopin-although I'm not done with Klonopin withdrawl yet. I still have 3/4 of a .5 pill to go.
I can see light at the end of the tunnel. I'm hoping that is my perpetuating factor "
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Reply #2 - 07/16/12  10:15pm
" Iggy,

To the best of my drug researching abilities over the years, I've not come across any info that benzos cause hyperalgesia. They are my drug of choice, have been for years, and I haven't had to increase my dose yet. I go up during a flare but easily come back down. I feel lucky that I haven't developed a tolerance but the eventual withdrawl does concern me some. Everyone is so different, particularly when it comes to meds. I don't want to discourage your search in finding your perpetuating factors. Every stone must be overturned until you're cured.

Tink "
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Reply #3 - 07/16/12  10:36pm
" Tink, I'm not talking hyperalgesia, I'm talking interdose withdrawl with benzos. "
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Reply #4 - 07/17/12  8:30am
" My mistake, Iggy, for not reading your post carefully. Your point makes perfect sense. "
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Reply #5 - 07/17/12  12:28pm
" It's an interesting idea Iggy, and I've just been looking through information on it all and mulled it over....

Last year I stopped taking diazepam throughout august and it was a grim time. After that I had alsorts of things going on, all the symptoms of mps as well as symptoms of worsening depression from what was (or wasn't) happening at work. Could all that have been from the after-effects of the diazepam withdrawal? Looking through the list of long term effects, well, then yes they could have been. Both mental and physical problems.

Looking back, I suspect they weren't causing too many problems for me longer term though. For a few reasons, but the main one being I was taking diazepam as my only benzo, which is used to help people 'step down' from other benzos. Plus I was only taking 8mg diazepam a day at my worst, which is much lower than many people use it at.

It took me about a month to kick the diazepam, really rough at the beginning but easing off towards the end as I started to take a herbal tincture called 'milk thistle' to help the liver excrete 'bad stuff'.

On balance, and looking through my diaries for that time, I suspect that the part played by long term diazepam withdrawal was a small part of the overall picture. But still a part. I think it helped amplify both the emotional and physical problems. Probably more the emotional problems, really.

This is good information to have for when (and that is 'when', not if) I stop all of these medications. I've already got help from a doctor who watches my reductions like a hawk (and I had a rubbish locum looking after me last august) and the knowledge of the milk thistle. I also have a really good section on tapering down medication on the 'pain clinic' website that I think, in a summary, talks about reductions of 10% at each step (I'm going to have to go back and look through that info again for accuracy, like how long each step is!).

It's all good information to have, adds to my resources. Thank you Iggy and Tink for this!!! "
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Reply #6 - 07/17/12  7:31pm
" A 10% reduction is what I've found is recommended for all psych drugs. Probably any drug 10% is good idea, so as to stay on the sane side.
I've been on Klonopin so long, it doesn't even help my MPS. I guess 20yrs would be asking a lot to still help. Maybe if I went up in dose, or changed to valium, but that's another ball and chain trying to find a dr to prescribe it. "

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