Myelodysplasia Support Group

Reply #234 - 06/20/12 4:05pm
I Have been taking care of my mother and this is our success story!!!
she was diagnosed in 2007 . well let me give you her history. she is 75 .she has had 36 transfusion red cells.
she has 8 living children . i am the youngest.she has insulin diabetes ,she had a pulmonary embolism .in 2000 that nearly took her life. she has had stage 4 melonoma tumor in her big toe. she is extremely overweight(snuggly laps are great) when you have 36 grands 31great grands.i began taking care of her she was on procrit, .b-12, benedryl to sleep and durring the transfusions.and potassium 80mg water pill 3X DAILY and about 20 other drugs.she was getting worse. tired all the time . the doctors said what changed in your life cause she was doing great. because one day bam it came like that and quick.i began analyzing her. she was having coffee ground feces. alot and i looked into that well benedryl causes internal bleeding in upper GI .WHEN MIXED WITH OTHER MEDS IN SENIORS.check drugs.com
so VALARIUM ROOT to sleep . well that slowed the coffee grounds except when she had a transfusioni didnt know that was the cause of the coffee grounds . i was guessing and trying. ok first of all i should say i have an 8th grade education so everything i know . is do GOD research and the love of my mom.ok long story short doctors nurses said i needed to accept she was dieing. Nope i need her a little longer.she was transfusion dependent (every 2-3 weeks) platelets were 17 and dropping ..she was sick alot i discovered SPLENDA(SUCRALOSE) was another killer. people wake up its in everything sugar free . (COULD IT BE POLULATION CONTROL)and about the time it got popular our parents began getting sicker and sicker.and dieing bloated stomach pain research it.
ok than i said no more benadryl when transfusing there are other antihistamines people. i gave her MILK THISTLE.,for platelets, i gave her ASTRAGALUS to build blood ELDERBERRY extract no more colds no more flu again have we had. and i have a 6 year old and they have been together daily sharing everything.best friends. i begged her to quick procrit she finally did. it caused her whole body to hurt . and did nothing good for her. at all she quit it yeah yeah she really had to trust me alot.what could she lose the doctors said your dieing.NO more tap water see almost every city has flouride great for kids deadly to imune depressed people. anway today she is called a walking miracle yes she still has diabetes . a big lap. edema high blood pressure ,but her platelets are 87. her reds are normal she had 36 transfusions IT TOOK THE LAST YEAR AND A HALF TO GET HERE but she is alive and we are going to not die do to MDS. BECAUSE WE ARE BLESSED and poor yes .
julia
Posted on 06/20/12, 04:46 pm