What is Myasthenia Gravis
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
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This disease is so frustrating. One day I feel fine and the next I feel like crap. I am working on 3 days of feeling human again but don't know what tomorrow will bring. Will I still feel good or will the bottom drop out again. I have been on this up and down roller coaster for two months now. I want the ride to end. Does anyone else have this problem too?
Posted on 11/02/09, 12:11 pm |
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Only most of the time. lol I have learned that I really have to pace myself and watch for signs of tiring out early. I'm not always great at that, but I'm learning because if I overdo it, then I'm done usually for the next day also. My big fat orange cat is better at sensing when I need a break than I am. He will meow sweetly at first and if I ignore he will get more insistent until I sit down, then he will plop on my lap and look at me as if "No way are you moving right now." Animals are so much better at picking these things up. 
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bryantc,
God i feel your pain!! I love rollercoasters but not this one.I have been up and down for 6 months..I have upped my anti depresants to 300 mlg. I have my ups and when i have my downs i have a good cry every now and then i just don't want pain anymore...but i will be damed if this is going to win...i am on anti depresants, allergy meds,imuran, prednisone and mestinon. god i am not even 40yrs old yet...i feel sick to my stomache and the hot flashes are out of control. hang in there and it is easier said than done (trust me i know) but try to keep a possitive attitute and when you have your downs the ones that really bring you down have a good cry seems to help me a little. Dawn
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My daughter's ups and downs are purely physical and, yes, it's unpredictable. She had a good week last week (went to school every day) and went out to the movies with friends on Halloween. She's been in bed the last two days- just exhausted, pale, weak. Even she has realized that it helps to be very consistent with the meds and with eating. (Keeping her blood sugar very steady helps a little.) But, boy, when she does too much it really wipes her out. Good luck. Sarah
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Just keep your head up B. when you feel like you are too weak to do something pace yourself. sometimes its get frustrating but you have to know your limits that way it will save you the trouble of falling and hurting yourself.
It will get better try to stay positive as much as you can.
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Hey everyone . I am new to the site . I do feel your pain . My passion is racing motocross . that came to an end on 3/08 when I was diagnoised with MG . I am currently on 10 mg of predisone a day and mestinon . I strugglke with my slurred speech and hard to swallow at times . I had to work from home due to my body not be able to handle the stress of my prior job . Sometimes I just want to cry and wonder why me .. people just don't know the struggle we go through. I am glad I found this site !
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It is a learning experience. Learning to read the signs your body gives you. I notice that if I push too hard my vision starts to go and I HATE double vision, so I stop and rest. I also try to take breaks between chores. I even have to stop while unloading the dishwasher! It is so lame to not be able to do even the smallest tasks! BUT I have also found that my faith keeps me going. I know if God wanted all the dishes done I'd be able to do them! LOL
Keep a positive attitude, keep loving people around you, and get support when you need it. And a good cry works too! Blessings to you all, Magda
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