Myasthenia Gravis Support Group

Hi Larry. My 15 yr old daughter was diagnosed with generalized MG when she was 13. There are a few of us "moms" on this site. Our hearts especially go out to the young ones like yourself. Welcome. Sarah

thanks sarah. i hope your daughter is doing better.

I'm another Mom. My daughter was diagnosed in 1996 at the age of 19. She is now 33 and is currently in the hospital for plasma exchanges. Feel free to ask any questions you have. Lots of us have years of experience in dealing with mg, but you have to realize that everyone is different. The things that work for one don't work for another. We wish you the best and again feel free to ask us anything. Marcia

Hi Larry

Glad you found us and we found you :-). This is the right place to ask whatever you need to ask reg MG and how we are dealing (or not dealing) with it. There are a lot of wonderful people in here ready to help us.

Rajesh

Hello Larry, my name is Darius and I was diagnosed in 2006. I too want to want to talk to others who understand. What treatments are you doing?

im taking mestinon time release and the generic brand of it. When i first diagnosed i was taking prednistone as well but after i showed improvements with just mestinon the dr removed me from prednistone.

one thing i've learned is that you cant be stressed out a lot and sometimes you have to wait to do things. But what you can do is try to revolve your day around your meds and then once you get stronger you can do more things.