I've had a couple of times when out and about that I started worrying about the situation I'm in with MG There I am, walking into a store just fine, but then I start waddling. Are my movements suspicious? What does store security think if they see me popping a pill in aisle 6? What if someone questions me and my eyes start misbehaving and I'm slurring my words? What if, what if. Now that I have my rollator, I would assume someone could use common sense and realize I'm not strung out on drugs, but nobody seems to have common sense any more.

If I was stopped by anybody, it would make my symptoms escalate if I couldn't have my mestinon, had to try and explain everything... I don't have to explain all that to you guys, of course.

Not that I drive now, but I never thought until this moment what would happen if I got pulled over and was slurring my words and, oh gosh, I could never walk that straight line, lol.

So we talked to our police department today, and gosh were they more helpful than I could have imagined. After talking to them I wanted to share what I learned.

Here is their advice:

Wear a medic alert bracelet, but it's not enough. Come in to speak with the Records Management department. Give them your information, doctor's name and number, what your medical condition is, and emergency contact info. They will create a file on you.

This way if a problem ever arises, they are already informed. Other police departmens will be able to access this info. If a store clerk or security tries to detain you because you look so suspicious, just have them call the police straight away. If the police stop you, just tell them to look up your file.


Now, I have a question. I thought I'd print out some basic info mainly on the visible symptoms of MG to give to the police. Anyone know of a good website that has a nice little concise description?