Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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deleted_user 12/06/2012

For the last 15 years I have been plagued with chronic kidney stones. About 3 years ago I had a major surgical proceedure on my left ureter to repair a stricture and remove several large stones from my left and right kidneys. After several years of not producing any stones I have now passed two stones since September, and am currently passing one (all on my left side). Having developed MG inh the meantime, I am concerned about how kidney stones will effect it?

Is there anyone out there with MG who also has some experience with kidney stones? Please, if you would, share with me any problems or solutions you have had.

Thanks for any help you can give me, Bob

mermaid3 12/06/2012

I literally feel your pain....I have had numerous kidney stones and the kidney & bladder infections that go with them...went thru lithrotripsy to break up the large ones so i could pass the pieces..lost so much bood and soooo painful had to spend the next 36 hrs in hospital.

My docs tell me not to ever take calcium supplements. They think my problem started with my pregnancies the babies took calcium from bones so ihad extra Ca floating in my blood stream. it settled in my kidneys.This was quite a few yrs ago.

Lately I have been experiencing twinges of pain in my right kidney (my worse one in previous yrs.). I am wondering if the prednisone which weakens ones bones might be throwing calcium into my bloodstream again. I have not asked my doctor about this yet. I see a new neuro in Jan as my old doc has left town.

I do get enuf calcium for bones in dairy products and other regular foods. I am small boned and can't afford to have them get very weak. So I might have to live with a few stones to keep the bones strong..... one of those pick your problem you think you can live with the easiest.

Don't know if this helps, but you are not alone. Can't really say if kidney stones make my Mg worse..no infections yet..been on cellcept for about 4 months now .. we shall see.

Oh I do drink cranberry juice alot when i for sure have a stone..it seemed to cut down on infections. and drink extra fluids in general to help pass the stone. Hope all goes well with your latest bout..take care. Karen

Kimber71 12/06/2012

I thought it was just me. I have had a lot through the years. A 6mm just last January. Too big to pass and had to have a procedure to remove it.
Kimber

txkiki53 12/07/2012

I also about 3 years ago had a stone in left kidney, had a stent put in the left ureter.. ouch... I also have several cyst, then in 2011 had part of my left kidney removed due to cancer. The stone was before mg.. but cancer after.
Annette

DebbieF777 12/07/2012

I had kidney stones, but it was due to hyperparathyroidism...

deleted_user 12/07/2012

This past summer I had lithotripsy to get rid of a huge kidney stone - too big to pass. For months I kept getting UTI's - so painful! I finally ended up in ER and they did an Ultra Sound and found it. I got through everything just fine and feel so much better. I have to take calcium for my osteoporosis and because I take prednisone. This worries me, but what can I do? Guess I'll just have to keep getting more xrays - ugh! I already have several xrays each year for cancer.
I wish you well and hope you will feel better soon.

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