I was just telling my husband again that I still can't believe that Curt is gone.

He so made me giggle at things he said, so straight to the point, which I love. He will be missed, but I also know that he would say pick yourself up and get on with it..

Annette

I didn't know him - do you guys want to share some stories? I'd love to hear them!

Motorcycles, he loved them. Nice ones. He would drive even if on a vent. lol He didn't believe in crying in your soup. He hated being sick, more than most people, I mean really hated it

. He was smart, very smart and hated it when some of us who shall remain nameless (me) would butcher the english language and punctuation.

He could be charming and exasperating, and I know I got on his nerves more than once, but if I was in trouble, say if I said something that concerned him for me, he would speak right up and tell me "I better do something about it. Don't mess around..
I
learned all of this in just the little time I knew him from here. I am so thankful that we are all so different. I only wish I had stood up to him more and not gotten my feelings hurt so easily. I would have loved to have known him even more.

The really strange thing is that even though I never met him in person or even saw a video of him, when I see pictures of him he is so familiar.

I believe that we all knew each other before coming to earth. I am so excited he is now free to do whatever he wants to do.

Only you guys will appreciate this. Two years ago when I first met Curt, he made me so mad I had slurred speech, lol. I came to understand that he was passionate and said what he thought without holding back.

He most definitely wanted everyone better. No doubt about it.

He was a firm believer in predisone and would get mad when people here didn't get the treatment they needed. He would get really mad if someone wouldn't get proper help when they needed to. He would alos get upset when docs didn't do treatments. You may wan to read entries form about 4 months ago. You can read some of his responces.
Ann

Passionate. That is what he was.

He stressed me out first exchange because he was trying to give me a wakeup call to get treatment and I was shocked the wrong way at first. I was IN DENIAL.

He offered his phone number to call him anytime. I did get treatment, but I had to struggle mightily to change my mind.(sigh)

I exchanged words on various subjects(many not even related to MG) with him for over a year, and plenty of heated discussions before I sent him a friend request. I wish I had listened to what he and my neuro said about getting treatment as soon as I was Dx.

He said I reminded him of his son once or twice. He used words or phrases like "get off your pity pot".

This is from Curt's profile page here on DS(his words):

"I was a severe myasthenic, beginning February 15, 2005. I'm now in remission...mostly. I don't believe in thymectomy for thymectomy's sake. I do believe in living life to the fullest and ignoring the disease. Work hard, play hard.
Treatments

First MG symptoms Feb. 15, 2005. Miserable. MG nearly killed me...literally. It put me into a coma. I was code blue, about 60 seconds from death. Forget what docs tell you, do the research, ask them questions and you tell them what you need and all will be well. Imuran has worked to keep me alive."

He would not hesitate to let anyone know that this disease can kill, and sometimes people need to hear it. MG can kill!

I will miss Curt.

Love,
TJ

I heard through a 3rd party that curt had passed. Too young! :( He touched alot of us in here....this was my first forum I went to for advice years ago, and alot of came from him. Straight to the point, Curt told how it was. He will be missed by many.

I'm sure Curt's up there riding a brand spanking new shiny BMW!

Hello.I am Curt's wife ,Elizabeth and I have been with him daily for the past 50 days until July 17.
We had his funeral memorial rmembrance yesterday,July 20th.
This group is important to him that he gave me access to the site.
I was consoled with the entries in
the guest book from the online newspaper,
http://www.legacy.com/obituaries/timesunion-albany/obituary.aspx?pid=158609794#fbLoggedOut
Yes, he would talked about the different therapy and medication of MG.
He continued the updates as long as he was able.
He had just finished his 2nd chemotherapy on July 7th.for his lymphoma.
July 11th, we enjoyed a DVD movie at the bedside. He was enjoying being out of bed July 12th.Over the weekend,he required more mestinon and prednisone.after evaluation by the neurologist.
His final diagnoses were the lack of WBC from his chemotherapy, pneumonia and lymphoma.
Curt was still responsive to my hugs, kisses with a smile and kisses. July 16pm.
I shall miss the Curt that I love.
Thank you.
Yours,
Elizabeth Mei Wong
EMWBoston@comcast.net

I just recently heard of Curt's passing, as my internet has been down for over a week It came as such a shock.. I feel Curt's presence, at this site and with all of us. Curt is still with us.

We all need to do what we can to helpraise awareness and find a cure for this terrible disease.

Thank you Curt for being a part of my mg life

I have not been on DS in a while and hearing that Curt passed really saddened my heart!!! I do believe he is now in a better place with no more pain and suffering. While I never really had conversations with him I so enjoyed the response he would give and will greatly miss his knowledge.

God Bless his family and give them strength to continue life without their Curt!

Love and prayers,
Charlotte

Elizabeth, I am so sorry for your loss.

Please know we are continuing to pray for you and your family.
Cathi

From Curt's wife.it gives me consolation when I read the entrants of the DS group,
I have requested further awareness with this:

Myasthenia Gravis Foundation of America, Inc., 355 Lexington Ave., 15th Floor, New York, NY 10017. at Curt's notice.
http://www.legacy.com/obituaries/timesunion-albany/obituary.aspx?pid=158609794#fbLoggedOut
Thank you for being his support,too.
He mentioned visiting someonesoon in East Tenn area,too.
Yours,
Elizabeth
EMWBoston@comcast.net

Curt has been a pillar, a rock in this group since the day I came on here a year ago. He was the biggest personality in this group. His responses to my posts were always uplifting and encouraging. Always so honest.
I'm so sad to hear of his passing..
I'm going to miss him.

Condolences to his wife, Elizabeth and his family.

I've been off line for a week and am truely saddened to hear of Curt's passing! Sincere condolences to you Elizabeth and the rest of his family! He will certainly be missed by all of us on this site.

Ange