What is Myasthenia Gravis
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
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just wondering
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hi, my name is chelsea. i'm sixteen turning seventeen this november. i've only had MG for a year now, and this year was stressful. i've already been in the hospital for a week, and received ivig treatment. i was just wondering what the next few years will be like? will it always be this bad? has anyone gone into remission? or found a way to cope? its all new to me still. thanks..
Posted on 11/04/09, 02:11 am |
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Hi Chelseaeae,
You found the perfect place for support. Hand in there. I have had this for only 5 months. so tiered of the upset stomache and the pain. i know when i get really down and have a bad day i let myself have a good cry. seems to help a bit. Dawn 
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well if you your meds help you a lot it will improve slowly and it wont be bad all the time, but there will still be days that are not good.
Mine went into remission for 2 1/2 years and it's recently starting to flare up again, but the beginning is a lot harder but it gets easier with time. The best way to cope for me is to find something i like to do that i can still do at full pace and also it's good to have a shoulder to lean and somebody to help push you to be positive when you are feeling down about this.
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Hi Chelsea,
The important thing to remember is that your life is not over. It does get easier. I've had MG for 2 1/2 yrs and I am in very good shape. I do all the normal things, I exercise, I'm living my life the way I want to. I even went back to school and enrolled in a very difficult program. I don't know that I would call it remission because I am on a lot of drugs, including IVIG, but it works. It has never been as difficult as it was in the first 9 months. I do have to be careful with certain things, like drinking, and I get tired faster than other people I know, but that is really just an adjustment. If you pay attention to your needs and take care of yourself, you will reduce the likelihood of having a relapse. I was 25 when I was diagnosed, and I felt like my life was over. I can only imagine how much worse it must be when you are 16. The truth is that it is just a challenge you will have to deal with. But it doesn't have to ruin your plans. You get used to it and you move on. Go back to being the person you wanted to be, just with a few adjustments.
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