What is Myasthenia Gravis
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
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I have had MG for 2 1/2 yrs now, im a mother of 1 and he is 6. My problem is my neourologist.I see hime every 6 months and hwen I do go to see him the appt last for 5 min (honestly). He asks me how am i? and do I need any refills?
Just last week I felt so bad, I mean falling outside, not being able to talk, just all around weak. I went to see my dr ( face all bruised up) all he did was ask the same 2 questions and say i'll see you in 6 months. Now my issue with that is it seems as though he doesnt really care, I had to tell him i've been doing research on the thymectomy and then he says something about it. I told him I think we should try increaseing one or some of the medications, I also told him the IGIV wasnt doing anything...so he sends for another one, i dont see the point if there not helping and they are very expensive. Should I be looking for a new doc? Its to the point where my PCP has to call him to see what the update is! Posted on 08/25/09, 10:08 pm |
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Have you had blood tests for autoimmune antibodies. You need them first. If positive, then have Thymectomy. See Dr. Blair Marshall's article recommending Thymectomy
http://www.georgetownuniversityhos... Both my civilian neurologist and military neurologist at Walter Reeed Army Hospital are absolutely brilliant and wonderful, see me often, do strength tests each time, arrange IVIG when needed, etc. I wish each of youhad such great doctors. Are there really not more than three neurologists in Wilmington, DE. Then go to Philly or Univ of Maryland MG Clinic. 
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