Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
Okay, so yesterday I'm blissfully happy finally embracing my little baby bump and anticipating the completion of my scrapstation and planning for the crib to arrive tomorrow. Then, last night, tiny worries start creeping in. Last night, those tiny worries blossomed into full blown nightmares and as of 8am this morning I've been in full blown worry mode. I've officially been...
I've been down because the MG has been giving me a hard time, well lupus has reared its ugly head this morning because of yesterday's drama. My husband totalled my car. My car that I paid off. My car that I just loved, that I took very good care of is now gone. It was a 03 Dodge Neon and it can be fixed, but the damage outweighs the value. I know the insuranc...
I promised myself that I would use this journal to document my time with illness. Most of the time I try to be positive because I believe in positive energy. Today I'm not feeling it and since I promised to document the truth, that is exactly what I will write today. I'm not feeling joy or happiness today. I even made it to the river yesterday, the rapids, that usu...
My first month on Mestinon was amazing. I could see everything and no ghosts or multi-dimensional images. The second month has been the complete opposite and I sent a fax to my doc today asking if an increase in Mestinon would help. Two days ago, I took a nap at 2pm because my eyes hurt. When I woke up at 3:45pm I couldn't see much of anything. This is the first time I really have felt scared ...
life just keeps throwing me curve balls. Im going away for a while. I dont want my daughter in my life. She has been lying to me. I dont know who she is anymore. I cant take all the bullshit fromt he teens on this site who pm and say they are goingto kill themseves anbd then never return to give an up date. Just going away.
Im so very frustrated today, Im sick of all the Doctors that are not doing crap for my MG, Im sick in tired of being at home! Im most pist about that The only person that can take me to my appiontments is my husband because I have no family other then my hubby and daughter here. It gets hard on me and him, When it comes down to it my hubby bitches and complains then its more hard in my head...