What is Myasthenia-Gravis
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
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Monday November 30, 2009
Positive Stories
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As of today, I have been feeling wonderful! God is good! Didn't think my eyes were ever going to adjust. I can walk for a long period of time and move around comfortably. YES!!!!!!
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As I watch our stock market tumbling I find myself feeling cynical, how did these folks get us IN to this mess! I then remember one of the the coolest coolest things about my job....THE PEOPLE...I get inspired all over again and I have to think we will all be ok. When I do talks in schools or community groups I tell kids about the long haul medicine entails&nb...4 Recommendations23 Comments
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After one week of being so fatigued that getting out of bed is such an effort and still waiting for the Specialists to ring - yeah right - the time has come to lift up my spirits, stagger around the house doing what chores need doing (I can't believe I said that, kitchen needs cleaning, floors vacummed and mopped, beds to be changed, clothes to fold up, washing to do and hang up, blah, blah, ...1 Recommendation1 Comment
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It's been awhile since I added a journal entry. The news from the doctor was very good. My CT was negative and he increased my medication. I am now taking a pill once every four hours. This is sometimes a pain, however, I feel great, so the tradeoff is worth it. Most of my general symptoms seem to be under control. The only lingering problems seem to be wit...1 Recommendation1 Comment
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I don't know if it was the session (HIGHLY suspect it) or if the new med is working, but I just noticed something and I wanted to journal it before they get ahold of me at the diagnostic center for the CT scan. Still not sure if they are going to use or, try to use, the dye.
When I first got up, it was that old familiar stiff and sore that was first to greet me this morning. ...1 Recommendation4 Comments -
I'm glad for yesterday's vent. It was one of those days that you think about something so much that your mind goes numb. Have any of those? I'm positive as I sit here and type this that I can handle anything that comes my way. I may have to stop and throw my two year old tantrums from time to time, but if that is what it takes... By no means do I have any...1 Recommendation4 Comments
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After yesterday's vent, I feel so much better; not great, but better. Plus I had enough time to clean some of the house, still some work to do there. I'm so grateful for journals, I had to get out that anger and negative energy in me before it festers and causes more damage. Of course I didn't get it all out, but it was enough to deal with for now. You&nbs...1 Recommendation2 Comments
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I got to spend some time in my garden yesterday morning, surprise, surprise. It is producing nicely despite the fact that it is overridden by weeds. I did two more rows and at one point had to stop and just lay on my back to rest as I was getting dizzy. Well I freaked my poor neighbor out. He came running and calling. I jumped up and he yelled at me not to do that to...1 Recommendation5 Comments
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I just got back from the long drive to Duke and while I'm very exhausted, I'm also a little elated. My sister ended up driving with mom, but I'll get to that in a minute. I get to start tapering the evil prednisone, yes!!!! Doc says that I'm just one of those people that feel worse on prednisone and will be an easier patient for them to get off of it. I kne...1 Recommendation4 Comments
