What is Myasthenia-Gravis
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
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Tuesday December 1, 2009
Frustrating Stories
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I had my second dose of IVIG. Don't feel any different. I'm concerned that this will not help me. I will continue to stay strong and keep praying.
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Can't understand why my vision is getting worse. I see the neurologist in 2 weeks. I cannot stand the double vision. My left eye is the worst. No droopy eye lids though. No fatigue. I guess it could be worse.....haven't been able to drive for 2 days and it is driving me nuts!!!! I am on such a high dose of Mestinon and Prednisone. Maybe too ...1 Recommendation2 Comments
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I am so frustrated!!! I am so tired of being tired all of the time! I am a full time student, taking six classes and I am so tired. I am having such a hard time focuing and getting all of my work done. Life really pisses me off sometimes. I need to find a job but it is too hard to wok and go to school at the same time but I am about broke now and have no one to help me financially. Sometimes I d...1 Recommendation2 Comments
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Well still on Prednisone. Can't seem to get my MG under control without it. I feel great, but I do not want to be on Prednisone at 45mg daily forever. I have gained weight and my face is really round and puffy. I guess I gotta take the good with the bad.....I just take one day at a time.1 Recommendation2 Comments
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my original entry disappeared when I tried to fix a typo so this only adds insult to my already rough day.
Today is the worst day I've had since I began Mestinon one month ago. I'm sure it's just my body adjusting since I stopped Sanctura two days ago (overactive bladder medication). But I did NOT expect things to be this bad.
It hurts to look. I laid down in midday to rest my aching e...1 Recommendation2 Comments -
I've been down because the MG has been giving me a hard time, well lupus has reared its ugly head this morning because of yesterday's drama. My husband totalled my car. My car that I paid off. My car that I just loved, that I took very good care of is now gone. It was a 03 Dodge Neon and it can be fixed, but the damage outweighs the value. I know the insuranc...1 Recommendation4 Comments
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Im so very frustrated today, Im sick of all the Doctors that are not doing crap for my MG, Im sick in tired of being at home! Im most pist about that The only person that can take me to my appiontments is my husband because I have no family other then my hubby and daughter here. It gets hard on me and him, When it comes down to it my hubby bitches and complains then its more hard in my head...1 Recommendation2 Comments -
So, as those of you that have been following along, Vicki had signed a DNR. Well, yesterday she decided that she wants to live even if it means being on the ventilator so she tore up the order. grrrrrrrr. I have mixed feelings about it. On one hand, I feel she has a better chance of survival now, but at what cost. I now get to visit her in ICU when she has her next c...1 Recommendation1 Comment
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Helpless, frustrated, angry, this is how I feel about Myasthenia gravis.... My baby Sofia was diagnosed with occular myasthenia gravis sept 22, 2009. Since then we have been living with fear of what may come next. Until today it had only affected her eye lids. Today we notice her smile more and more crooked. Her upper lip does not move when she smiles and the left side of ...1 Recommendation1 Comment
