What is Myasthenia-Gravis
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. At about 14 cases per 100,000 (in the U.S.), it is one of the lesser kno...
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Thursday November 26, 2009
Anxious Stories
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I am praying constantly... I guess just my human nature is trying to interpret what may or may not happen instead of resting in the knowledge that God is in control, and it is His will that will surpass all others. I met with the birth mother last night, she told me i needed to put on the paperwork that I was a family friend instead of a cousin of the father, due to the fact that he is want...
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I just received a call from a friend of mine's mother, Kathryn was hospitalized tonight in respiratory distress and is on a respirator.
Kathryn is only 25 years old and was diagnosed with MG the same day as myself, that is where I met her.
At that time I didn't realize nor imagine what a good friend she would become over the next little while, after all, there is 29 years separating u...1 Recommendation1 Comment -
It has been a long 2 days now since Kathryn was admitted to hospital in respiratory distress. The first day was very hard, it was difficult to see her in that condition, so weak and so vulnerable. At first I didn't quite know what to do, she couldn't talk except with her eyes, the silence was so deafening, so finally, I sat down, held her hand and starting talking, she always li...1 Recommendation1 Comment
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Just a short note before I'm off.
Yesterday they tried to take Kathryn off the respirator, I thought it was too soon and it was, she last 30 minutes. I wish I had been wrong. She is determined to succeed by weeks end and she just might.
I continued to tell her stories to try and keep her mind occupied, so far my voice, though hoarse and losing it's power, is still holding up.
Kathryn wrote m...1 Recommendation1 Comment -
Well it is with great trepidation and a heavy heart that I pack my suitcase. My hubbie and I are going to stay in an apartment in the City for three days. Although I am looking forward to some "us" time, a bit of luxury and a different set of four walls, I am also very anxious. Last June for our wedding anniversary we stayed in the City and it wasn't a great succes...1 Recommendation
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tomorrow my husband has a consult with Dr. Olarte at Columbia Presby. He is supposed to be very good at helping Myasthenia patients. I am wondering if anyone has seen him?
Last week the local neurologist increased Hal's Mestonin. It seems to have helped him quite a bit. he is talking better and has more strenght, but also more stomach problems. Nothing comes witho...1 Recommendation -
Hal has been home since Tuesday, (today is Saturday). It feels like a year since he was in the hospital and received his devestating ALS diagnosis.
I woke up not know what day it is. One day runs easily into another. Very bizarre. I feel like I am loosing my mind. I can't remember anything wihtout effort. And I have so little energy left. When I...1 Recommendation1 Comment -
Tomorrow I see the neuro again and the closer it gets, the more anxious I am becoming. I will find out the results of the chest CT and, hopefully, of all of the blood tests that he has ran. I am not sure why I am beginning to feel this way, but I am. I find myself going back and forth. One minute I am praying that he will tell me that my thymus is normal and the next I hop...1 Recommendation1 Comment
