Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
http://www.nationalmssociety.org/research/intriguing-leads-on-the-horizon/ccsvi/index.aspx
CCSVI Live Web Forum
April 14, 2010, 12:00 p.m. ET
The National Multiple Sclerosis Society and the American Academy of Neurology (AAN) will hold a live 90-minute Web forum for journalists and the general public on the topic of chronic cerebrospinal venous insufficiency (CCSVI) and what it could mean to people living with multiple sclerosis. The event will cover what is currently known about CCSVI and what yet needs to be determined in order to establish what its relationship to the MS disease process might be and whether surgical intervention can improve the disease course. The live Web forum will feature the following panel:
* Dr. Paolo Zamboni, Director, Vascular Diseases Center, University of Ferrara, Italy
* Dr. Robert Zivadinov, Associate Professor of Neurology at the University at Buffalo, State University of New York
* Dr. Andrew Common, Radiologist in Chief at St. Michaels Hospital, University of Toronto, Ontario, CA
* Dr. Aaron Miller, Professor of Neurology and Director of the MS Center at Mount Sinai, New York, member of the AAN Board of Directors, Chief Medical Officer of the National MS Society
Register now online (12 p.m. ET April 14) and ensure your system will support the live Web forum player. Questions for the panelists can be submitted online in advance of the live Web forum through Facebook or Twitter, or in real time through the live Web forum player.
CCSVI Live Web Forum
April 14, 2010, 12:00 p.m. ET
The National Multiple Sclerosis Society and the American Academy of Neurology (AAN) will hold a live 90-minute Web forum for journalists and the general public on the topic of chronic cerebrospinal venous insufficiency (CCSVI) and what it could mean to people living with multiple sclerosis. The event will cover what is currently known about CCSVI and what yet needs to be determined in order to establish what its relationship to the MS disease process might be and whether surgical intervention can improve the disease course. The live Web forum will feature the following panel:
* Dr. Paolo Zamboni, Director, Vascular Diseases Center, University of Ferrara, Italy
* Dr. Robert Zivadinov, Associate Professor of Neurology at the University at Buffalo, State University of New York
* Dr. Andrew Common, Radiologist in Chief at St. Michaels Hospital, University of Toronto, Ontario, CA
* Dr. Aaron Miller, Professor of Neurology and Director of the MS Center at Mount Sinai, New York, member of the AAN Board of Directors, Chief Medical Officer of the National MS Society
Register now online (12 p.m. ET April 14) and ensure your system will support the live Web forum player. Questions for the panelists can be submitted online in advance of the live Web forum through Facebook or Twitter, or in real time through the live Web forum player.
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
MS. This man went to a vascular clinic for treatment of CCSVI & says that he feels 75% better.
How is that for excilting!
to me some ideas i had about it were articulated and it was strongly recommended that the trial work be allowed to go to it conclusion, except for perhaps some that have a very aggresive active MS that could be allowed a compassionate use for now.
It was interesting that someone said the MAJOR improvement was a reduction of fatigue, but is this reduction from a reduction of MS fatigue or had a person with CCVSI been experiencing fatigue from the CCSVI itself? MS fatigue alone must be much less than MS + CCSVI fatigue combined.
Also I though someone said the population which had the most improvement were SP with relapses present and PP.
I thought in the original study those two groups did not hold the improvement? I'm not sure if I heard it right, I guess I need too wait for the transcript to be posted.
It was an interesting well done presentation.
http://hosted.mediasite.com/mediasite/Viewer/?peid=5625f9f8badd40eab1b1a3ebb41a8ba6
Those results were real difficult to grasp even with the slide show so I'm hoping they'll be easier to see. What I thought I heard was the mention of improvement also in those with SP and PP... those were real tough to follow.
It seemed to me that the improvement in fatigue was hard to pinpoint... Could be that those with CCSVI have a more dramatic experience with fatigue... That is an excellent question.
Do you hear the part about those who've had the treatment have been able to dream again? I had not hear that all or some of them couldn't dream.... Now I'm real curious to read more on this... does seem like a procedure I'd like to watch for a few years before I'd think about getting diagnosed and treated. I'm so glad you posted this!