Hi Dave,

There are several threads about this drug if you want to look them up, they might help you. But we don't have anyone who has taken it in the new form as it has just come out. There are people who have taken it in previous forms, and they seem to have mixed reviews. If you do not get many responses, we sometimes have talked a subject out and take a rest! LOL, please go back an look...the most recent ones are called Amprya, or have it in the title.

very nice of you to be looking for this for your friend. Allso, if cost is s problem, they are offering an assixtance program. Good Luck to your friend. If the yare not on this board, and could be, you might suggest it. We are full of information, again, LOL.

Hope this helps

http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/9087146-ampyra-fampridine
http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/8937569-fda-approves-ampyra
http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/9064737-projected-cost-ampyrafampridine/page-2
http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/8928366-ampyra
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You might find this interesting too.
http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/8824033-reducing-nerve-fatigue

Best wishes,
EP

EPagain is very helpful. I am just sort of, LOL Thanks, again, EPagain.

I've been taking 4AP-aminopyridine the pre FDA approval form of ampyra / fampridine for over 18 months. In one word, I would say miraculous. I've lived with PPMS for over 27 years and this is the first MS med that's been helpful. Recovery from fatigue has been vastly improved. I can walk further and stay up longer without resting as much. 4AP came with cautions re seizures. I took anti seizure meds for a while but stopped on my own as it wasn't necessary. I take 4AP 4 times a day. IT'S NOT A CURE, but it sure makes it easier to live. Can't wait to start on the new and improved time release ampyra. As usual, your mileage may vary. BUT, if I'm not mistaken this is the first contribution from the pill vendors that's geared towards PPMS.

reply #4

Isn't it nice that they have at least one thing that we can put in the plus column? My doctor is leaning towards having me try this. She had experience with it as an intern, as she says, "some years ago," but the concern about the side effects was a real problem. She said that as far as a good reaction from patients, yes, absolutely, but the risk was high. She is very hopeful about this new form.

I am glad to hear that you are doing so well with it.

My doctor wants me to take it, but it is taking about a month to get the office organized with the single pharamatical doing the distribution. I would be glad to have you contact me later in the month of April to see what is happening and what I think if you want.

I am seeing my Neuro at the VA on Thursday. She is aware that I have been taking the 4AP with an outside doc. The VA won't prescribe anything not FDA blessed. I hope that Ampyra is on their Apothecary, or will soon be. Will update when I get back.