Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Here is the CTV W5 story of Dr. Zamboni for anyone that may be interested!!!!!
* http://watch.ctv.ca/news/w5/the-liberation-treatment/#clip237617
* http://watch.ctv.ca/news/w5/the-liberation-treatment/#clip237617
See my GP, ask for an ultrasound to see if there are any areas
which are blocked or narrowed. If so, see if an angioplasty can be done to correct this.
Who knows, such a thing could be dangerours & need to be corrected. ????
http://www.youtube.com/watch?v=yGFe-3h26Vs
something else to check out..... CCSVI in the treatments category, poster is msgrandmom. She had this done by Dr. Dake at Stanford.
I am on the phone first thing in the morning to talk to any of my Dr.'s.
Even if it's not THE cure, it makes so much sense and why not have it done if it can help your symptoms at all??
I urge all MS patients to get tested for narrowing, twisting or outright blockage of the veins (this is an easy procedure). Beware of the reticence of the MS Societies of Canada and the U.S.. They are notoriously pro drug companies and will discourage patients from getting tested for blockage or pursuing this treatment.
"When it comes to my health, I am going to do what's best for me. I am going to get tested as soon as possible and if they do find blockage or narrowing, I will not wait for three independent placebo controlled trials before seeking treatment. As Dr. Zamboni said, time is of the essence because MS is a progressive disease.
If you know of any MS patients struggling with the disease, please tell them about this new treatment. It's crucial that patients be aware of this novel approach for treating this disease."
the trials in ny are--i think -just mris and things like that
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http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=2944
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You are here : Home : MS Research News : New Discoveries : Chronic cerebrospinal venous insufficiency (CCSVI)
Chronic cerebrospinal venous insufficiency (CCSVI) Print this page
Researcher's labour of love leads to breakthrough in treating Multiple Sclerosis
I am confident that this could be a revolution for the research and diagnosis of multiple sclerosis
Dr. Paolo Zamboni
Elena Ravalli was a seemingly healthy 37-year-old when she began to experience strange attacks of vertigo, numbness, temporary vision loss and crushing fatigue. They were classic signs of multiple sclerosis, a potentially debilitating neurological disease.
It was 1995 and her husband, Paolo Zamboni, a professor of medicine at the University of Ferrara in Italy, set out to help. He was determined to solve the mystery of MS an illness that strikes people in the prime of their lives but whose causes are unknown and whose effective treatments are few.
What he learned in his medical detective work, scouring dusty old books and using ultra-modern imaging techniques, could well turn what we know about MS on its head: Dr. Zamboni's research suggests that MS is not, as widely believed, an autoimmune condition, but a vascular disease.
More radical still, the experimental surgery he performed on his wife offers hope that MS, which afflicts 2.5 million people worldwide, can be cured and even largely prevented.
I am confident that this could be a revolution for the research and diagnosis of multiple sclerosis, Dr. Zamboni said in an interview.
Not everyone is so bullish: Skeptics warn the evidence is too scant and speculative to start rewriting medical textbooks. Even those intrigued by the theory caution that MS sufferers should not rush off to get the surgery nicknamed the liberation procedure until more research is done.
U.S. and Canadian researchers are trying to test Dr. Zamboni's premise.
For the Italian professor, however, the quest was both personal and professional and the results were stunning.
Fighting for his wife's health, Dr. Zamboni looked for answers in the medical literature. He found repeated references, dating back a century, to excess iron as a possible cause of MS. The heavy metal can cause inflammation and cell death, hallmarks of the disease. The vascular surgeon was intrigued coincidentally, he had been researching how iron buildup damages blood vessels in the legs, and wondered if there could be a similar problem in the blood vessels of the brain.
Using ultrasound to examine the vessels leading in and out of the brain, Dr. Zamboni made a startling find: In more than 90 per cent of people with multiple sclerosis, including his spouse, the veins draining blood from the brain were malformed or blocked. In people without MS, they were not.
He hypothesized that iron was damaging the blood vessels and allowing the heavy metal, along with other unwelcome cells, to cross the crucial brain-blood barrier. (The barrier keeps blood and cerebrospinal fluid separate. In MS, immune cells cross the blood-brain barrier, where they destroy myelin, a crucial sheathing on nerves.)
More striking still was that, when Dr. Zamboni performed a simple operation to unclog veins and get blood flowing normally again, many of the symptoms of MS disappeared. The procedure is similar to angioplasty, in which a catheter is threaded into the groin and up into the arteries, where a balloon is inflated to clear the blockages. His wife, who had the surgery three years ago, has not had an attack since.
The researcher's theory is simple: that the underlying cause of MS is a condition he has dubbed chronic cerebrospinal venous insufficiency. If you tackle CCSVI by repairing the drainage problems from the brain, you can successfully treat, or better still prevent, the disease.
If this is proven correct, it will be a very, very big discovery because we'll completely change the way we think about MS, and how we'll treat it, said Bianca Weinstock-Guttman, an associate professor of neurology at the State University of New York at Buffalo.
The initial studies done in Italy were small but the outcomes were dramatic. In a group of 65 patients with relapsing-remitting MS (the most common form) who underwent surgery, the number of active lesions in the brain fell sharply, to 12 per cent from 50 per cent; in the two years after surgery, 73 per cent of patients had no symptoms.
Augusto Zeppi, a 40-year-old resident of the northern Italian city of Ferrara, was one of those patients. Diagnosed with MS nine years ago, he suffered severe attacks every four months that lasted weeks at a time leaving him unable to use his arms and legs and with debilitating fatigue. Everything I was dreaming for my future adult life, it was game over, he said.
Scans showed that his two jugular veins were blocked, 60 and 80 per cent respectively. In 2007, he was one of the first to undergo the experimental surgery to unblock the veins. He had a second operation a year later, when one of his jugular veins was blocked anew.
After the procedures, Mr. Zeppi said he was reborn. I don't remember what it's like to have MS, he said. It gave me a second life.
Buffalo researchers are now recruiting 1,700 adults and children from the United States and Canada. They plan to test MS sufferers and non-sufferers alike and, using ultrasound and magnetic resonance imaging, do detailed analyses of blood flow in and out of the brain and examine iron deposits.
Another researcher, Mark Haacke, an adjunct professor at McMaster University in Hamilton, is urging patients to send him MRI scans of their heads and necks so he can probe the Zamboni theory further. Dr. Haacke is a world-renowned expert in imaging who has developed a method of measuring iron buildup in the brain.
Patients need to speak up and say they want something like this investigated to see if there's credence to the theory, he said.
MS societies in Canada and the United States, however, have reacted far more cautiously to Dr. Zamboni's conclusion. Many questions remain about how and when this phenomenon might play a role in nervous system damage seen in MS, and at the present time there is insufficient evidence to suggest that this phenomenon is the cause of MS, said the Multiple Sclerosis Society of Canada.
The U.S. society goes further, discouraging patients from getting tested or seeking surgical treatment. Rather, it continues to promote drug treatments used to alleviate symptoms, which include corticosteroids, chemotherapy agents and pain medication.
Many people with multiple sclerosis, though, are impatient for results. Chatter about CCSVI is frequent in online MS support groups, and patients are scrambling to be part of the research, particularly when they hear the testimonials.
Kevin Lipp, a 49-year-old resident of Buffalo, was diagnosed with MS a decade ago and has suffered increasingly severe attacks, especially in the heat. (Heat sensitivity is a common symptom of MS.) His symptoms were so bad that he was unable to work and closed his ice-cream shop.
Mr. Lipp was tested and doctors discovered blockages in both his jugular and azygos veins. In January of this year, he travelled to Italy for surgery, which cleared five blockages, and he began to feel better almost immediately.
I felt good. I felt totally normal. I felt like I did years ago, he said. He has not had an attack since.
As part of the research project, Mr. Lipp's siblings have also been tested. His two sisters, both of whom have MS, have significant blockages and iron deposits, while his brother, who does not have MS, has neither iron buildup nor blocked arteries.
While it has long been known that there is a genetic component to multiple sclerosis, the new theory is that it is CCSVI that is hereditary that people are born with malformed valves and strictures in the large veins of the neck and brain. These problems lead to poor blood drainage and even reversal of blood flow direction that can cause inflammation, iron buildup and the brain lesions characteristic of multiple sclerosis.
It is well-established that the symptoms of MS are caused by a breakdown of myelin, a fatty substance that coats nerve cells and plays a crucial role in transmitting messages to the central nervous system. When those messages are blurred, nerves malfunction, causing all manner of woes, including blurred eyesight, loss of sensation in the limbs and even paralysis.
However, it is unclear what triggers the breakdown of myelin. There are various theories, including exposure to a virus in childhood, vitamin D deficiency, hormones and now, buildup of iron in the brain because of poor blood flow.
While he is convinced of the significance of his discovery, Dr. Zamboni recognizes that medicine is slow to accept new theories and even slower to act on them. Regardless, he can take satisfaction in knowing that the woman who inspired the quest, and perhaps a dramatic breakthrough, has benefited tremendously.
Dr. Zamboni's wife, Elena, has undergone a battery of scans and neurological tests and her multiple sclerosis is, for all intents and purposes, gone.
This is probably the best prize of the research, he said.
Source: The Globe & Mail Copyright 2009 CTVglobemedia Publishing Inc (22/11/09)
Neurologists investigate possible new underlying cause of Multiple Sclerosis
Neurologists at the University at Buffalo are beginning a research study that could overturn the prevailing wisdom on the cause of multiple sclerosis (MS).
The researchers will test the possibility that the symptoms of MS result from narrowing of the primary veins outside the skull, a condition called "chronic cerebrospinal venous insufficiency," or CCSVI.
CCSVI is a complex vascular condition discovered and described by Paolo Zamboni, M.D., from Italy's University of Ferrara. In the original Italian patients, CCSVI was found to be strongly associated with MS, increasing the risk of developing MS by 43 fold.
This narrowing restricts the normal outflow of blood from the brain, causing alterations in the blood flow patterns within the brain that eventually causes injury to brain tissue and degeneration of neurons.
"If we can prove our hypothesis, that cerebrospinal venous insufficiency is the underlying cause of MS," said Robert Zivadinov, M.D., Ph.D., UB associate professor of neurology, director of the Buffalo Neuroimaging Analysis Center (BNAC) and principal investigator on the study, "it is going to change the face of how we understand MS."
Michael Cain, M.D., professor and dean of the UB School of Medicine and Biomedical Sciences, said a positive outcome from this trial would have enormous implications for the treatment of MS. "Being able to identify those at risk of developing MS before symptoms take their toll could change the lives of millions of persons who now face inevitable lifestyle restrictions."
Margaret Paroski, M.D., executive vice president and chief medical officer of Kaleida Health, parent of Buffalo General Hospital where the BNAC is located, commented: "Will Rogers once said, 'It isn't what we don't know that gives us trouble, it's what we do know that ain't so'. Challenging basic assumptions about diseases has lead to some very important discoveries.
"When I was in medical school, we thought peptic ulcer disease was due to stress. We now know that 80 percent of cases are due to a bacterial infection. Dr. Zivadinov's work may lead to a whole different way of thinking about multiple sclerosis."
The preliminary findings were based on a pilot study at the BNAC headed by Zivadinov, and at the Universities of Ferrara and Bologna, Italy, directed by Zamboni and Fabrizio Salvi, M.D, respectively. The study showed that several abnormalities affecting the predominant pathways that return venous blood from the brain to the heart occurred more frequently in MS patients than in controls.
This research, supported by the Hilarescere Foundation of Italy and the BNAC, was conducted to replicate the findings of the Italian investigators.
"Results of this preliminary study, which involved 16 relapsing-remitting MS patients and eight age-and-sex-matched healthy controls, showed that all the MS patients, but none of the controls, had chronic insufficient blood flow out of the brain," said Zivadinov.
Bianca Weinstock-Guttman, M.D., UB associate professor of neurology and a co-principal investigator on the pilot study, added: "The images from this study were acquired using a method called Doppler ultrasound. The method identified anomalies in the venous blood flow associated with strictures, malformed valves and peculiar webs within the large veins of the neck and brain"
Weinstock-Guttman directs the Baird Multiple Sclerosis Center at the Jacobs Neurological Institute (JNI), UB's Department of Neurology. The JNI and BNAC are located in Buffalo General Hospital of Kaleida Health.
Advanced magnetic resonance imaging scanning (MRI) of the MS study patients conducted at the BNAC also identified distinct areas of iron deposits in the brain, and showed that those deposits may be associated with the location of MS lesions and sites of impaired drainage. The scans also revealed increased brain atrophy and changes in the flow of cerebrospinal fluid in the MS patients.
These results, which form the basis of the current larger investigation, were presented at the 25th Congress of the European Committee for Treatment and Research in Multiple Sclerosis held in September in Dusseldorf, Germany
The new study will involve 1,600 adults and 100 children. The cohort will be comprised of 1,100 patients who were diagnosed with possible or definite MS, 300 age-and-sex matched normal controls, and 300 patients with other autoimmune and neurodegenerative diseases. Enrollment in the study has begun and will continue for two years. MS patients from across the U.S. are eligible to participate in the study.
"The prevailing wisdom that central nervous system damage in MS is predominantly the result of abnormal immune responses against the patient's nervous tissue has been challenged by research findings, which have demonstrated a significant neurodegenerative component in MS and the progressive loss of neurons" said Zivadinov.
"However, these inflammatory and neurodegenerative processes occur concurrently in MS and vary considerably among patients, making it difficult to identify the cause, or causes of the disease. Consequently, the origin and development of MS remains poorly understood, and its cause remains elusive."
To determine if these preliminary findings can be repeated, Zivadinov and Weinstock-Guttman organized the present study, which will evaluate both the velocity of blood flow through both the brain's blood vessels and the extracranial veins, using Doppler ultrasound.
The technical name of the study is "combined transcranial and extracranial venous Doppler (CTEVD) evaluation in MS and related diseases".
All study subjects will undergo a general clinical examination and a Doppler scan of the head and neck to acquire images of the direction of venous blood flow in different body postures. Participants also will provide blood samples, and complete an extensive environmental questionnaire to identify potential MS risk factors.
All MS patients will undergo MRI of the brain to measure iron deposits in lesions and surrounding areas of the brain using a method called susceptibility-weighted imaging. Iron findings on these images will be related to neuropsychological symptoms. The neuropsychological part of the study will be conducted by Ralph Benedict, Ph.D., professor of neurology and psychiatry at the JNI, UB's Department of Neurology.
A sub-cohort of 250 consecutive patients and controls will undergo MRI of the veins of the neck to confirm diagnosis of CCSVI.
Murali Ramanathan, Ph.D., associate professor in the Department of Pharmaceutical Sciences, UB School of Pharmacy and Pharmaceutical Sciences, will analyze blood samples for proteins and soluble factors associated with central nervous system injury. He also will be looking for other factors of interest in MS research, such as vitamin D metabolites and cigarette smoking, which have been linked to increased risk for developing MS as well as MS disease progression.
The data will be unblinded at three predetermined time-points, with the initial unblinding scheduled for November 2009.
Zivadinov said results of the study may lead to a larger multicenter North-American trial that will evaluate the occurrence of CCSVI in MS.
Commenting on the study, Helen Yates, Multiple Sclerosis Resource Centre Chief Executive said, CCSVI is a very recent discovery in the field of MS and any work that can further Paolo Zambonis research and hypothesis is very welcome indeed. As Robert Zivadinov,MD says, if CCSVI is proven to be the underlying cause of MS this would be a major sea change in the understanding of the disease, its cause and will open up new areas of research towards a potential cure
The University at Buffalo is a premier research-intensive public university, a flagship institution in the State University of New York system and its largest and most comprehensive campus. UB's more than 28,000 students pursue their academic interests through more than 300 undergraduate, graduate and professional degree programs. Founded in 1846, the University at Buffalo is a member of the Association of American Universities.
Source: University at Buffalo 2009 University at Buffalo. All rights reserved and MSRC (15/10/09)
Endovascular Treatment for Occluded Jugular Veins
Hi,
I recently underwent surgery to treat severely occluded jugular veins in which 3 stents have been placed to keep the blood flowing properly. Since the operation I have noticed improvements in various MS symptoms.
The magnetic resonance venography revealed stenoses at C1-2 in both jugular veins. A 4cm x 1cm titanium nickel alloy stent was placed in my right jugular and in the left jugular a 4cm x 1cm and another 2cm x 1cm titanium nickel alloy stent from Abbott labs was inserted via the femoral vein during a 2.5hour operation.
The operation was undertaken on fentanyl, a relatively mild local anaesthetic. During the operation I was asked to hold my breath at various different junctures. When the stents were opened it was agony! I was then put on a stronger pain-killer called percocet.
Blood thinning meds were also used as until the endothelium grows over the stents fully there is the risk of blood-clotting. I am therefore on warfarin, aspirin and plaxil for the next 6 weeks. My last EDSS according to the National Hospital for Neurology in Queens Square was 6.5.
I have noticed an immediate improvement in night spasms when the legs jerk around just before sleep. I also was amazed that during the 12 hour flight back from California I only needed the toilet twice and was able to void relatively easily. Since then I have noticed that bladder urgency has improved. I also have noticed greater flexibility in the right foot and leg which had been badly affected.
This is obviously early days but it is EXTREMELY exciting. I am the first UK patient to have had this treatment at Stanford Universtiy, California.
Alex Gibbs
Chronic cerebrospinal venous insufficiency (CCSVI) a new model of Multiple Sclerosis
Background:
The extracranial venous outflow routes in clinically defined multiple sclerosis (CDMS) have not previously been investigated.
Methods:
Sixty-five patients affected by CDMS, and 235 controls composed, respectively, of healthy subjects, healthy subjects older than CDMS patients, patients affected by other neurological diseases and older controls not affected by neurological diseases but scheduled for venography (HAV-C) blindly underwent a combined transcranial and extracranial colour-Doppler high-resolution examination (TCCS-ECD) aimed at detecting at least two of five parameters of anomalous venous outflow. According to the TCCS-ECD screening, patients and HAV-C further underwent selective venography of the azygous and jugular venous system with venous pressure measurement.
Results:
CDMS and TCCS-ECD venous outflow anomalies were dramatically associated (OR 43, 95% CI 29 to 65, p
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Mon Nov 16, 2009 7:03 pm Post subject: Who are the BIG names in CCSVI ?????
Hey oldtimers,
I'm working with the Administrative Director of the Hope Center for Neurological Disorders at the Washington University School of Medicine in St. Louis. He wants me to compile a list of IMPORTANT scientists/doctors who are favorable toward the CCSVI model of MS. I'm trying to stir up interest here in St. Louis. Would people please look at this list and tell me about anybody I have missed ???
Thanks,
Ozark
--------------------------------------------------
Dr. Roberto Bergamaschi, Director of the MS Center of Pavia (Italy)
Steven R. Brenner, MD, Associate Professor Department of Neurology & Psychiatry, St Louis University School of Medicine
Dr. Brenner responded favorably via an eletter response to Dr. Zamboni's paper "Chronic cerebral venous insufficiency in patients with multiple sclerosis"
Dr. John Cooke, MD, PHD, professor of cardiovascular medicine, Stanford University School of Medicine
Dr. Patricia Coyle, Stony Brook University Hospital, NY dept. of Neurology
Gary Cutter
Professor of Biostatistics and Head of the Section on Research Methods and Clinical Trials, Birmingham, University of Alabama, USA
Gary Cutter developed an outcome measure for motor and cognitive efficiency in multiple sclerosis known as MSFC. He is Professor of Biostatistics at the University of Alabama
Dr. Michael Dake
Chief of Cardiovascular and Interventional Radiology, Stanford University School Of Medicine, Stanford (USA)
He was the first surgeon to accept Prof. Paolo Zambonis suggestion to operate on stenosis associated with CCSVI
Claude Franceschi
Head of Vascular Laboratories, Saint Joseph Hospital, Paris (FRA)
No doubt the greatest venous haemodynamics expert in the world
Dr. Ellliot Frohman, University of Texas Southwestern Medical Center Neurology, Dallas, Texas
Giulio Gabbiani
Head of the Department of Pathology and Immunology, Centre Mdical Universitaire, Genve (CH)
One of the greatest world experts in vessel wall structure
Roberto Galeotti
Head of the Interventional Radiology Section, University Hospital of Ferrara, Ferrara (ITA)
E. Mark Haacke
Director of the The Magnetic Resonance Imaging Institute for Biomedical Research, Detroit (USA)
Inventor of the SWI system, i.e. the most sophisticated and advanced system for the diagnosis of multiple sclerosis
Byung-Boong Lee
Chairman Georgetown University School of Medicine,Washington DC (USA)
Chairman of the International Consensus Conference on congenital venous malformations
Dr N. Med. Tomasz Ludyga, specialist of vascular surgery, specialist of general surgery, specialist angiology, EUROMEDIC, Katowice, Poland
Dr. Ludgya works with Dr. Marian Simka perfoming CCSVI stenting procedure in Katowice, Poland
Francesco Mascoli
Director of the Vascular Surgery B.U., University Hospital of Ferrara, Ferrara (ITA)
Joseph Raffetto, MD, Lecturer on Surgery, Harvard University, Brigham and Women's Hospital
Prof. Juergen Reichenbach, PhD Inst. fur Diagnostische und Interventionelle Radiologie, Universitatsklinikum Jena
MRT-Gebaude Am Steiger, Philosophenweg 3, D-07743 Jena, GERMANY
He is working with Prof. M. Haacke
Fabrizio Salvi
Head of the Centre for Rare and Neuroimmune Diseases, Bellaria Hospital, Bologna (ITA)
He was the first neurologist to work with Prof. Zamboni in the clinical experimentation of removing the venous obstruction" from MS patients
Franz Schelling
Author of several Hypothesis Papers in the 80s on the etiologic role of the venous system in MS
Dr. Marian Simka, Department of Angiology, Pszczyna, Poland
Dr. Simka has written a paper on how to perform doppler sonography on the extracranial veins of MS patients
Dr. Simka is also imaging and stenting MS patients from all over Europe
Andrea Stella
Professor of Vascular Surgery, University of Bologna,Bologna (ITA)
Bianca Weinstock-Guttman
Jacobs Neurological Institute, Buffalo (USA)
One of the greatest experts of multiple sclerosis in the pediatric age
Paolo Zamboni
Director of the Centre for Vascular Diseases, University of Ferrara, Ferrara (ITA)
He discovered and described CCSVI in MS patients
Robert Zivadinov
Director of the Buffalo Neuroimaging Analysis Center, New York State University, Buffalo (USA)
One of the greatest experts in pharmacological trials for multiple sclerosis and efficacy measures using MRI
Last edited by ozarkcanoer on Thu Nov 19, 2009 9:36 am; edited 9 times in total
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muse
Getting to Know You...
Joined: Aug 06, 2009
Posts: 16
Location: New Zealand
Posted: Mon Nov 16, 2009 8:44 pm Post subject:
Prof. Juergen Reichenbach, PhD
address:
Inst. fuer Diagnostische und Interventionelle Radiologie, Universitatsklinikum Jena
MRT-Gebaude Am Steiger, Philosophenweg 3, D-07743 Jena, GERMANY
email: Juergen.Reichenbach@med.uni-jena.de
He is working together with Prof. M. Haacke (case 1) and he is a big name in the line of business.
Best
muse www.csvi-ms.net/en
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Mon Nov 16, 2009 8:56 pm Post subject:
Thanks, muse, I added Professor Reichenbach to the list.
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Mon Nov 16, 2009 9:57 pm Post subject:
Please note ;
I keep updating this list as I add new names. Please make me aware of any names I should add or delete !!!!
Thanks for your help,
Ozark
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Sofabed
Newbie
Joined: Oct 16, 2009
Posts: 6
Posted: Tue Nov 17, 2009 1:29 pm Post subject:
Dr. Bergamaschi, Director of the MS Center of Pavia (Italy).
translated with google from an italian forum http://www.sclerosi.org/forum/viewtopic.php?t=19112&postdays=0&postorder=asc&start=60 :
here is the complete text from Facebook: CCSVI in Multiple Sclerosis http://www.facebook.com/pages/CCSVI-nella-Sclerosi-Multipla/139997017782 in the 4 November 2009:
Dear friends,
finally some good news. He replied Dr. Bergamaschi, Director of the Center SM of Pavia. Here is the text:
"Mr. Rasman Gent.mo.
MS Center of Pavia is an extremely interesting topic to which you refer, and there is every reason to perform the evaluations "vascular" (and possibly intervention) in patients with MS. In particular, we have an interventional neuroradiology, and we are on good terms with both Dr. Salvi, both with Prof. Zivadinov, with whom we work for years (often also sending our staff to Buffalo). We took to obtain the necessary equipment, and I think we shall shortly be operational.
If you like we can keep in touch for updates on the evolving situation.
Sincerely
Roberto Bergamaschi "
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Tue Nov 17, 2009 1:48 pm Post subject:
Thanks, sofabed !!!!! I have added Dr Bergamaschi to the list !!!!
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Tue Nov 17, 2009 4:10 pm Post subject:
I added a neurologist, Dr. Stephen Brenner. He responded favorably to Dr. Zamboni's paper.
Here is Dr. Brenner's eletter in response to Dr. Zamboni's paper :
http://jnnp.bmj.com/content/80/4/392.full/reply#jnnp_el_4667
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Tue Nov 17, 2009 4:56 pm Post subject:
FYI:
The Hope Center for Neurological Disdorders :
http://hopecenter.wustl.edu/Pages/default.aspx
Hope Happens... fundraising nonprofit for the Hope Center
http://www.hopehappens.org/
Ozark
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Wed Nov 18, 2009 11:52 am Post subject:
Thanks to the CCSVI board moderators for making this a sticky !!!!
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Wed Nov 18, 2009 12:45 pm Post subject:
Can anybody tell me the name and background of the "Dr. L" who performed the stenting procedure on Erika ????
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ozarkcanoer
Family Elder
Joined: Oct 16, 2009
Posts: 212
Location: St. Louis, Missouri
Posted: Wed Nov 18, 2009 1:16 pm Post subject:
Is this correct ??
dr n. med. Tomasz Ludyga, specjalista chirurgii naczyniowej, specjalista chirurgii oglnej, specjalista angiolog
dr n. med. Tomasz Ludyga, specialist of vascular surgery, specialist of general surgery, specialist angiology, EUROMEDIC, Katowice, Poland
http://www.euromedic.com.pl/index.php?m=8
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ErikaSlovakia
Family Elder
Joined: Jul 30, 2009
Posts: 361
Location: Slovakia, Europe
Posted: Thu Nov 19, 2009 2:16 am Post subject:
ozarkcanoer wrote:
Is this correct ??
dr n. med. Tomasz Ludyga, specjalista chirurgii naczyniowej, specjalista chirurgii oglnej, specjalista angiolog
dr n. med. Tomasz Ludyga, specialist of vascular surgery, specialist of general surgery, specialist angiology, EUROMEDIC, Katowice, Poland
http://www.euromedic.com.pl/index.php?m=8
Yes, this is correct.
Erika
_________________
LUCKY GIRL, Aug. 7, 09 Doppler Ultrasound made by Dr. Simka in Poland, left Jugularis valve problem, RRMS since 1996, EDSS 5,5, Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN
http://www.thisisms.com/ftopict-8778.html
Sincere Regards,
Mike Spiotti