Multiple Sclerosis (MS) Support Group

I have had it since 2001. I was told I had the progressive kind as soon as I was diagnosed. I was taken aback, as I had no clue on earth what was wrong with me!!!!! Had I heard of MS at that point...yes, but I didn't know what it WAS. (I found out real fast!!LOL)

I had been having symptoms for 6 months before I went to the dr. I just went to my family dr and kept apologizing that I was wasting her time cause I was just telling her such goofy things!!! Well, obviously she wasn't feeling they were goofy, and recommended me to a neurologist without telling me what she suspected. I just said "Wow, so this could be something serious???' and she simply said 'Yes.' Ok.......!!!!!!

When I saw the neurologist he first did the MRI's and all of those things/tests. Hooked up to electrodes, etc. They came back all majorly pointing to his diagnosis of MS. I never shed a tear. I just sat there thinking... "Wow, this is serious!!!" He wanted me in the hospital right then. I said I was going home to tell my kids, as I'd be in there for 5 days. We drove the hour back home, I told them and then hubby and I drove back up to the hospital. It was crazy!! They did a spinal tap and he said it was without a doubt, MS. Ok...!!!!!! So there began my 'journey."

I was forced to quit my job (my DREAM job, I might add), and I had to go on disability. The neurologist said it was my only option. I reluctantly had to agree with him. So.....8 years later I'm home, I can't drive, and I walk with a cane. But.....I'm not complaining. I still am blessed by each day I wake up. I tend not to take ANYthing for granted. I have so much to be thankful for.

We need to stay positive!!!!!

I was first diagnosed this past May with RRMS. My symptoms have been pretty mild, but I have been symptom-free since the first week of September. This website is a good example of the variability of MS. Some people have written about how severe their symptoms are and others have made comments in posts that they have not had an exacerbation in years. I agree with GladImSaved that we need to stay positive, which is not always easy.

I was Dx June of 2008 with RRMS. I think I'm doing ok... only have been hospitalized 3x since diagnosis. The Rebif helps.

i was dx april 14,2004. i have been on Rebif ever since and in the past 1 1/2 years i have declined. the tremorsf are bad. the pain is real but, the morphine and oxycodone help me move without crying. but, i dont let my trremors or pain or trouble walking hold me back from doin the things i want to do. ms affects everybody differently. iam thankful everyday.

I was DX a year this month. This time last year I was having difficulty walking, balance was bad, & was having Ms hugs. Now I've been on Copaxone for a year, balance is good, I walking fine, when get tired or it's to hot I have a little limp.I keeping my fingers crossed, lol.

I have probably had MS for a very long time as I remember having unexplained fatigue for years before I had a major exacerbation and was diagnosed in 2004. Guessing I would say I have had symptoms of MS for almost ten years total. I have RRMS with no residual issues apart from a very slight sensory deprivation (hardly noticeable) in my right and left pinkie fingers. I have never taken any DMDs but have managed it after diagnosis for a couple of years with the Best Bet Diet. Currently, instead of restricting certain foods, I just avoid them as a rule and continue to take a few supplements. I am trying to get on LDN and will seek an examination for CCVSI once I get back to the States and get the treatment for that if the results are positive.

I was dx'd with RRMS in August of '07, although I remember having syptoms 3 or 4 years before that. I've been on Avonex and am doing fine. I get tingley numb feet and legs every so often, but I'm moving well and haven't had any pain for severals months now.

Was diagnosed near Labor Day in 1993. Have been on Betaseron for years. I'm still able to do anything I want, as long as I watch the heat. Never had a relapse.

Suggestion, don't ever dwell on what might happen. Get out and live your life the best way you can. MS should never be the major focus of your world. You have a life, do everything in your power to go live and enjoy your life.

I was diagnosed with RRMS on my 35th birthday after two bouts of double vision and L'hermitte's a few months prior. I'm almost 37, so it's been about two years. I feel lucky that I haven't had any major relapses. Just some slight numbness in my left foot, and my balance is starting to erode. I'm on Rebif, and it is working. I also get migraines and fatigue, which seem to be the most aggravating. I am certainly not complaining! (...at least not today, hee hee!)

Having MS has made me realize I need to get off my butt and do some of those things that I've always wanted to do. It's actually opened up my life in many ways, even though it sucks sometimes. I'm just glad I found this group, and I appreciate all of you!

23 years and counting... Still walking, cane free now... Been in a chair, on a walker, etc etc etc...

Listen, I'm not a quitter (except for smoking... LOL) and I push push push myself... I have too much to do on my farm to just hang around every day... The activity keeps me going I think as I push through the stiff legz and fatigue...

Finally, NOBODY (doctor, nurse, guru, fortune teller) can tell you how your MS will progress... We are all different and MS treats each of us individually. I for one think that staying positive and doing as much as I can is the best way to live with my MS... Stay positive and happy as it will take you very far!!!

xoxoxo Cj (Cindyjo)