What is Multiple Sclerosis MS
Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...
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Eyesight issues
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Well I really don't know where to start with this issue because it is so hard to describe. When I was diagnosed with MS in 2007, I had optic neuritis in my left eye. Now everyone that has had this knows what's it like, or maybe it's different for everyone, but I can only describe it as "a dull spot" or "bright blurriness." Since then I have, however, gotten used to this. I even work on computers a good 12 hours of my day and I manage pretty well. But lately in the last few months, it's been happening in my right eye.. Since then I have been to the Opthamologist, where all I get is a "minor redness in the nerves" diagnosis and their is nothing they can do.
I mean, what else can they do when I am able to read everything in front me with a little strain. I technically still have 20/20 vision, so they look at me like.. what are you complaining about? It's so very irritating living with something that NO one has the answer to. It's even more irritating when I can't really explain it. It's worse when I am stressed that's for sure.. which is, well.. all the time in my lame line of work. I guess I am just wondering if anyone else has this issue and if they do, what helps? Tinted glasses of some kind? To try to explain a little more, my situation, it's a sensitivity to brightness I assume. Night streets with stop lights and bright blinky lights is the worst for me. As is florescent lighting in all shopping situations. I can tame it and deal, but my eyes get so damn tired to where even looking at the Television is too much. :( Owell. If anyone has any experience with this, I'm curious. Thanks. Posted on 11/04/09, 10:11 pm |
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The nurses were god send to me the first year & even now 5 years later.
Call the nurse and ask what you should do. See the opto first or your neuro? One will probably lead to the other. I would start with the neuro first because you said your eye tests are good..but its more than that. I'm not certain how long the delay is for appointments to each, that affects your decision too. Is your opto a neuro opto, opthomalogist? . Who could prescribe steroids? Be warned steroids do come with some negative consequences They are a trade off. Many want to do steroid for small sensation stuff before they learn it is saved for the larger thing, which do eventually happen. Steroid affect blood sugar, a danger to diabetics. They also leach calcium, weakening bones teeth & gums. Cavities! :( If you go the steroid route, take some calcium supplements with a Vitamin D supplement too.. Actually start taking calcium supplements now, with the understanding you have MS and the treatment will cause you to have a need for calcium & vitamin D supplements. Explain that this vision issue has a greater consequence on your lifestyle right now, because of your job & livelihood. More aggressive treatment is needed than would otherwise be required because of that. Extra Vitamin D is needed for calcium supplements to be absorbed. 
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i wish i could offer any advice, but all of my eye issues (and there have been a ton of em) concerned diplopia. equally disturbing, trust me...
every time this happens, i am put on a 3-5 day dose of solumedrol and it miraculously works for me. and quickly, too! enough to have doctors tell me that that theyve never seen such a quick recovery... talk to your neuro and your opthamologist for the solution that might work best for you. i dont necessarily agree with not treating the problem, but then i havent experienced what you are going through. so, due to my lack of experience with ON, all i can do is say good luck and stay positive! i would definitely see my trusted doctor(s) and check out all my options for possible treatment. while they may see nothing too wrong with you, its YOU that has to matter to YOU. sometimes, the one that has to spur the doctors is the patient. bottom line, if it affects your quality of life and you want to persue treatment, you ABSOLUTELY have that right!
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