What is Multiple Sclerosis MS
Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...
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Do the MS Walk everyday?
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Funny, I was just thinking about 40 years ago I walked a MS Walk, the only one I've ever done. Now I have MS and I can't walk no more. Isn't that weird? Has anyone else done something similar in support of the disease and years later get hit with it?
Posted on 10/31/09, 10:10 pm |
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I nursed MS patients in a long stay hospital when I first qualified in 1982. They were all wheelchair or bed bound and highly dependent on the staff. MS hit me in 2005 and bought fibro along with it. How life changes.
Hugs, Owlxxx 
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About 15 years ago when my daughter's where in school one of their friend's mom had MS. They use to come home from their house and tell me about her and how difficult it was for them to see her like that. Little did they know 5 years later their own mother would be diagnosed with the diseaseWhen I was diagnosed I wasn't sure how they were going to react but I actually think it made it easier for them as they knew a little about MS by then and they had their own support system in their friend.
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from '95-'99 I worked in a Neuro Office as the Supervisor of Clerical Triage (30 Neuros, I was in charge of all the their schedules and could open slots for emergencies such as strokes, epilepsy emergencies, alzheimer setbacks and MS flares...) There was a large MS Clinic within the PC with 3 MS specialists. My Neurologist here knows the lead 2 MS specialists very well. I have often thought of my past work during this diagnosis process...
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When i moved to my current location about 12 years ago, the husband of one of the people I met through volleyball had just reached the wheelchair stage of PPMS. On girl's nights we would discuss in depth with her about the internal trauma she was feeling about considering moving him into a home as she physically couldn't look after him any more, even with daily visits from nurses and carers. Such a hard time for her and an impossible decision to have to make.
That was the only experience I had of MS when it was first mentioned to me, so it took a great deal of research and reassurance from doctors before I was sure I had a better outlook for the forseeable future at least.
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