Multiple Sclerosis (MS) Support Group

sounds like you are in the right place...welcome to our ms world!

your entire story rings a familiar tune for many of us, i'm sure.

but you are here now. you know that you have ms and that can be a beautiful thing, right?
better than wondering? better than beating yourself up or being embarrassed?

this is a place where you can find many answers, feel a true sense of belonging, and where everything you share is important and validated...

welcome to the group!

peace,
katie

Welcome vern959. I'm happy that you have a good neuro after your bad experience with the one. Yep, you have lots of company here in this group with the symptoms you describe, so never, ever think you're alone.

Thanks Crazy and Bobby -

I thank you for your support !! Your right Crazy I have been in denial about the seriousness of this disease, but I'm trying to accept and cope with this. There are currently a lot of things I'm dealing with - HUGE STRESS AT WORK- is one of them and I think it makes my MS symptoms 10 times worse.

I can be in total agreement there! I am soon going into a neurologist for the first time and I just don't know what's going to happen. I am also the other new person to this forum. I joined without an official diagnosis, even though all my problems are right on the dot with other folk who have officially been diagnosed.

My father tells me I just need to get out and move around more to gain strength in my body.
But one question, if by doing that makes me worse off? It's smart to go back to the bed where at least it's somewhat comfortable.
My dad thinks I'm making this up, but how could one person fake this? Even laying in bed I still have the right arm shaky tremors and my legs go numb.

Thank you all for this support site. This is as well going to be a long journey.
:) So thank you very much, everyone having a kind word will make this just a little bit more tolerable.

Thanks,
Carl

Welcome to the sandbox!

We can relate to your story.

You're going to fit right in.

Glad to have you! Come play with us often!

Welcome new friends. I am a seasoned vetran of having MS. I have had it for 17 years now and yes, i wish i didnt but in a lot of ways, it has made me a better person, a better wife, a better mother and a better friend. You will find warmth, laughter, intelligent discussions and genuine friendship her at DS. I hope i can become one of the many friends you will make at this site. Dont hesitate to write me if you have any questions or just want to talk. i am here for you both.
hugs,
Dawn

Darling, I'm another "seasoned veteran" who has had MS for 23+ years... Sounds as if you were dx rather quickly! Be happy for that as you are able to treat the MS with what I have found to be a great treatment!

Took me over 7 years to be dx so you're lucky to know so quickly. When I was dx, betaseron was the ONLY treatment, and I had to go in a lottery to get that... After over 8+ years on that with open sores wherever I gave a shot, I'm happy to be on Copaxone with very few side effects.

My first attack had me leaving the hospital in a wheelchair, and I'm happy to say that I am very mobile all these years later. Quitting work and moving to the country also has me OFF A CANE so I could not be happier! Sounds like you got lucky and have a great neuro already--that is a big plus for you!

This is a great place for support and info and direction so I'm glad you found DS already... We all just keep moving forward, dealing with our issues, and living a GREAT LIFE as best we can!!! WELCOME!!! xoxoxo Cj (Cindyjo)

This is a great place to be welcome aboard.I have had MS for 7 years but got diagnosed 2 years ago.I use copaxone also and it's great i used to drag my right foot and i couldnt move my right toes,about 2 weeks ago i could move my toes and i now dont drag or drop my right foot, so copaxone is great that is the only thing that i take.I also walk like im drunk so i guess that's pretty common with this disease.Take care and hang in there.

Hello Everyone, (New to Group)

I'm new to this site and I really do have a big question to ask anyone that would be willing to reply back to me. First let me say I have never been told that I have MS by any doctor I have seen in the last few years. I started having symtpoms of dizziness, pins and needles, crawling sensations and kind of nerve pain throughout my body for the last two - three years. Sometimes I seem hypersensitive to everything. In the last few months I started having burning sensations in my lower spine that radiated to the whole spine and crawling sensations and burning sensations everywhere in my body. I'm sometimes sensitve to warm water when i shower. I've had 3-4 MRI's in the last two years (two with constrast). All were negative and normal. I've had two EMG's in 2004 and 2008 which were normal, I have tons of blood work to rule out other diseases. I have a test where they stick you with needles to test your muscles. I am very anemic and I take Iron twice a day with B-12. I feel dizzy almost everyday. This year I had MRI brain, MRI C-Spine, and another EMG which were all normal. I'm still having most of the above symptoms but the doctors seem to think I must be experiencing some sort of anxiety or maybe a disease process will manifest eventually. It's been 5 years since the onset of these symtoms. I also experience some sort of vibrating symptoms in my lower stomach, pelvic area every now and then. Do my symptoms sound like MS to you? Please someone reply and tell me what you think? Sorry for this being so long, but I had a lot to say.