Multiple Sclerosis (MS) Support Group

I have been diagnosed with possible MS 6 months ago. Ruled out a bunch of stuff...stroke, lymes, vitamin deficiencies, liver issues... It is fustrating not to have the full diagnosis and feel so odd.

Look normal to others...have a few goods days every once in a while...but most days - fatigue, pain behind left eye, tingling and slight numbness on left side of face, neck, arm, stomach, thigh, calf and foot. The tingling can be itchy, it can feel like bug bites sometimes, it can feel cold sometimes. It moves around. The left side of my lips can feel a bit like novicain and drool in the corner of my mouth. because it is so focused on my left side - I feel lopsided...like droopy on one side of my body. And yet even though I have all these sensations...I can still move without issues. I feel like I should just sit and rest - but I don't - I find movement is better. At times I can't focus or remember things. My arms and legs completely fall asleep every night and wake me out of a sound sleep. And on a personal note - I have to wear a pad daily for urine leakage.

Just curios if others have any ideas on how to handle the odd sensations - the tingling and itchiness and bug bite sensations drive me nuts at times. Especially distracting when I am at work and need to focus.
Posted on 07/03/09, 06:07 am