Multiple Sclerosis (MS) Support Group

I HAVE MS, BUT HAVEN'T EXPERINCED THESE THINGS. I DO WANT YOU TO KNOW THAT I AM PRAYING FOR YOUR HUSBAND AND I UNDERSTAND, MAYBE PARTLY HOW SCARY IT MUST BE! DO YOU HAVE TO WAIT THAT LONG TO SEE THE NERO?! THAT SEEMS TOO LONG!

SheM,

Call the Neuro ask to be squeezed in or ask to be on list for cancellation appt.
I agree with aimless this is too long to wait.
It could be many things so the Neuro would have to say.
If this Neuro can't fit you in ask hospital for copies of your test results and call another Neuro.
Please keep us updated.
(hugs) Mary

Dealing with dr.s are a pain. This is too long to wait. if they are not aggressive to get you a prompt diagnoses you need to try to find one who is. Me and my family are dealing with the same problem. People said it has taken 7 years to get diagnosed and that is unacceptable. Be aggressive and pushy.

also this site is a great way to become educated to form questions for your dr. but always take things from here as a direction to ask and research not truth.

I have not heard of these symptoms all going with MS. I have been diagnosed with MS but for many reasons my sisters and I are researching online the symptoms we have and there is a chance that I have been mis-diagnosed. it is amazing all the diseases that mimics MS so do your studying on line and get into a dr. NOW.

with that said, because this might not seem like the typical MS symptoms does not that it could be. MS has many non-text book symptoms but just know too there are lubar test that come back positive that mean other things than just MS. Do you research now so when you do go in , you confront your dr.s with other possibilities and be demanding and pushy.
Goodluck

I mave ms and my feet & hands have been tingling for years. So long that I'm almost used to it & I'm gratefull because it doesn't really hurt. One thing I might ask is if he gets tired easily, because fatigue was my first symptom for years.

What can i say thank you all so very much from my heart for replying to my cry of help i feel for all of you deeply that suffer from m.s and all families affected by this i just wish i could be stronger... that's enough of me feeling sorry for myself so sorry to you all if i come accross so selfish i don't mean to be i am just so worried and scared. We have an appointment with the D.r tomorrow see what happenes once again big thank you and huggs to all of you

Try not to worry too much and remember if it is MS, it is only life altering, NOT life threatening. You may have to make adjustments along the way, however, he will still be there for you! And your young boys! He will need alot of support: I will say a special prayer for your family that everything turns out just fine! Cara

You know SheM, the MS Society puts out a DVD that is hosted by Meredith Viera, whose husband has MS. It's an okay DVD, but the funniest thing that my husband pulled out of the whole thing was when Meredith said, "he doesn't just have MS, WE have MS" (meaning the family). So now my husband likes to say, "YOU don't have MS, WE have MS"... It lightens things up for us. Good luck to you & your family.

Ditto to Marge's statement. Many large cities have support groups for caregiver/spouses. The NMSS, MSF, and MSAA have booklets for caregivers. Many times you can attend support groups with your husband. Best of luck, and hang in there, Leanna

I woke up one morning and looked in the mirror and one side of my face looked droopy; I could tell by my smile. I immediately went to my local Doc., no appointment. He walked out and took one look and said I think you have Bells Palsy, which I had never heard of, and you need to go over and see your neurologist NOW. I was treated with an oral steroid and my face returned to normal very quickly. There was no guarantee that it would do so, but it did. See a neurolgist NOW. Find an MS Specialist to work with any regular neurologist you may already have.
STay calm and supportive.

Hi,

Even if he has MS there is treatment. No worries. A lot of these symptoms can go away with prednisone or simply with rest, Many times they never come back. Just keep us posted, and blessings to you.