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Discussion:
Betaseron
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Quick question? I started on Betaseron a 2 months ago and I have not had one side effect. When researching meds, it seems the results from Copaxone, Betaseron, and Rebif are pretty similiar. Why do I see so many posts in here about Copaxone and Rebif and very few on Betaseron? Just curious, Thanks.
Posted on 01/10/08, 10:01 pm
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Reply #1 - 01/10/08  10:21pm
" just a note my betaseron contact informs me there is a new needle coming out in may shortest one on the market "
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Reply #2 - 01/10/08  10:22pm
" I have been on betaseron for about 5 years minus 1year because I thought I did not need it. anyway the 1st four years I had no side effects,except one time I had a sterile abcess from needle. I Have been back on Betaseron the last 8 months and now have a side effect.In which some areas where I inject i get a welt and it sometime itches,I use ice packs before and after the shot and seems to help.
But I have learned my lessen of not taking my shots, because of not taking, I had a really bad attack. I am now getting better from it. But I will never again stop taking, just because I am doing so good.But you are right about reading posts and they are usaully about the other injections. I chose Betaseron because it was the 1st Ms drug on the market and has been on the market for over 20 years and the others have not been around that long. "
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Reply #3 - 01/10/08  11:53pm
" betaseron has only been on the market about 10 years give or take a year. my hubby was in the 1 st round to take it.he never had any real problems on it. warm packs and massaging after shots stop the welts also make sure alcohol is dry before the shot. "
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Reply #4 - 01/11/08  12:30am
" I have also noticed there is not alot of disscussion on betaseron. I was on it for 2 years and did not get alot of side effects but it made me feel....not right. I went off of it in April because me and my husband wanted to have a baby, and truthfully I have not felt better since. After the baby comes I will be going to copaxone, but if Betaseron is working for you all the best, and good luck. "
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Reply #5 - 01/11/08  5:29am
" I've been on Betaseron since 1996, with a one year break where I was on Avonex. The doc didn't think Avonex was working as well as Betaseron, so he switched me back.

The main side effects that I have are the injection site reactions and depression. I've just learned to live with the site reactions, and take Prozac Weekly for the depression. I firmly believe that Betaseron is the reason I'm doing as well as I am today, although the shots do get tiresome. "
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Reply #6 - 01/11/08  8:15am
" FIRST OF ALL IPPY LOVE YOUR ICON THE REPUBLICAN ELEPHANT.I WAS ON BETASERONE WHEN I WAS FIRST DX OCT. 2006 STAYED ON IT UNTIL APRIL 2007 THEN WENT ON THE LDN BEEN ON THE LDN SINCE WITH GREAT RESULTS MY LAST MRI SHOWED NO MORE LESIONS.ALL I CAN TELL YOU IS WHEN I WAS ON THE BETA SERONE I DIDNOT FEEL GOOD OR LOOK GOOD.HOWEVER IF IT'S DOING WELL FOR YOU GREAT I LOVE THE LDN NOT ONLY BECAUSE IT WORKS FOR ME BUT IT'S IN PILL FORM NO NEEDLES TO TAKE. "
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Reply #7 - 01/11/08  8:22am
" I was on Betaseron for a while after Avonex, but then Dr. switched to ReBif. So, it is still out there, I just think that there is more emphasis on the newer drugs as they come out. I requested being taken off ReBif for LDN, but I understand there is a new formulation of ReBif coming out. I think the "in" thing for now is Tysabri though. I also think we are all just guinea pigs for the newest drug on the market. But that is a whole other subject! "
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Reply #8 - 01/11/08  9:43am
" I have been on Betaseron since being dxed in Sept. 2006. I have been fortunate with no side effects (other than site reactions sometimes). My neurologist was the one who determine it should be Betaseron. Since I didn't know anything about MS drugs, I took his word for it. Seems to be working for me. Have had no relapses and no new lesions on last MRI. "
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Reply #9 - 01/11/08  11:41am
" Been on Betaseron since 2003. It works for me and I know that it is keeping me almost exacerbation free.
I don't like the "spots" from the injection. Red spots. I've yet to discover anything that really helps with this. I'm trying to massage the area that is injected after the injection. I'll let you know if it works. "
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Reply #10 - 01/11/08  2:52pm
" I've been takeing Betaseron since my Dx. in Nov. of 2006.
I have had no problems except for some depression. I have been on 10 mg. a day of Lexepro for the last year.
my neuro and i decided to slowly take me off the anti-depressent to see if it was just and early side effect of the Betaseron.
I have had 2 attacks this last year and have went from 8 lesions to 15 on my brain but my neuro says it could have been alot worse without the Betaseron.
were going to see how I do for the next 4 months and If I continue to progress we will consider switching to Tysabri.
april "

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