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Discussion:
Accepting or giving up?
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It's not denial, I'm just very selective with the reality I accept.

I had a very difficult conversation with someone today who said some very harsh things to me. Not mean things, just harsh.

Last night, I honestly thought I would not survive the night. It was bad. And tonight is not shaping up to be much better.

I cannot seem to find relief and all I want to do is to have a few hours without pain.

My friend reminded me that I have MS, and as such I might need to accept the fact that I will no doubt forever be in pain. That I am struggling so hard to feel better that maybe it is time that I start to accept the fact that this may be as good as I ever get and that in fact… this may be my good days. That soon I could get worse.

Those words hurt. I did not want to hear them. They were the cruelest words I have ever heard.

This came from someone who loves me. Someone who was not being cruel, just trying to get me through this.

So, at what point do you stop denying, start accepting and readjust? Is it giving up or is it accepting?
Posted on 04/16/12, 02:52 am
15 Replies | Most Recent Add Your Reply
Reminder: This is a support group for Multiple Sclerosis (MS). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Comment:
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Reply #11 - 04/18/12  12:38am
" I would accept that you have ms but never give up hope, I was hit with ms suddenly being paralyzed from the neck down with a very long list of debilitating symptoms, but now I run several miles per week,swim laps at the pool, work full time, travel overseas on holidays.

Anything is possible with this disease and everyone has their own unique course which is something to always have hope about.

I have accepted that I have ms and that my condition could change again for the worse, but my hope is through a healthy diet and lifestyle that my symptoms will be only minimal.

I hope for you all the best! "
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Reply #12 - 04/18/12  12:13pm
" There's so much positive energy in this thread, I'm delighted to read it all. I love to look at the positive side and yeah, even though some days it seems more challenging to do just that, we have to spring back to the place where we do have hope and expectation. "
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Reply #13 - 04/18/12  1:19pm
" hey- never give up- cause it can get better!!- its so frustrating- but look ahead!! now 4 pain u need something that works? rest- too!! that helps!! big hugs!!-yeh- sometimes nothin helps- but it i hope will pass!! "
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Reply #14 - 04/19/12  8:24am
" Stay positive and live your life how you want to as best you can. I say that because I just passed through the darkest time with MS with intense pain that made it nearly impossible to focus on anything but the pain. Believe you me, I was not in a good place. I was mad that I had MS, I was mad at God, mad at everything. But when I stopped focusing inwards, I can honestly say that the days that were BETTER during those four weeks were the days I just lived my life normal, trying not to focus on the pain or MS. I continued to work as best I could. Showing up at work seemed wrong, like I didn't belong, but the more I focused on things other than the intense pain, the better I felt. Getting home after work felt like such an accomplishment. "Wow, I did it" I thought to myself. At least I had that. The days I stayed home I felt nothing but the pain.

Also find ways to laugh. Hopefully you can be around people that can help with this. Be able to laugh about yourself. It helps me immensely. Laughter trumphs pain. At least in my experience. "
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Reply #15 - 04/19/12  10:11am
" Ohhh....... I love this thread..... all the positivity! MS hits us each differently, but always remember you have control on how you respond. It isn't easy somedays, that's for sure, but it will get easier if you focus on the positives and not the negatives. Think of all the things you DO have in your life!!!!

Hugs to you! "

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