Multiple Sclerosis (MS) Support Group

Just started yesterday after 2 yrs of not trying anything. It was a very hard decision for me to even begin the drugs but we shall wait and see.

I was on Rebif for 10 months. It did give me flu like symptoms, but with it I would take 2 tylenol & naproxone (sp?) & that took care of the flu like feelings. It is always best to start on some kind of treatment early. This being the 3 treatment I tried it was one of the easiest. The only reason I switched was because I was still having alot of progression & symptoms.

It is a hard decision but are the benefits going to out way the risk? Do alot of research before you decide any new medication.

best of luck!

I am not taking medication for my MS and will never be on medication, I am just wondering everyone else experience on Rebif.

I was diagnosed in April of 2009 and started Rebif shortly after. (I was 55! The doc said I probably had MS for quite awhile. ) I have had good luck with the Rebif. My MRI one year later showed no further progression-MRI the same.I take 3 ibuprofen with my shot before bed. If I forget I definitey feel awful until I take something. The doc's told me to take 3 ibu. when I give myself the shot and 3 the next morning, and 3 more 4-6 hours later if needed. After a few months needed less the day after the shot . Do I think the Rebif gets the credit for the remission? Who knows. But, I'm going to keep giving myself the shots because I don't want to take a chance on relapsing if this does help! Good luck, Judy

Your story sounds like a success story to me and you are obviously happy with the Rebif and how it has changed your life and that is so wonderful for you.

I am on Rebif. Have been since March of this year. DOn't see any progression. Flu like symptoms are bad when I forget to take my advil before the shot. I hate needles so that's the pits. Other than that no problems. Oh yeah the injection site bruises for about 48 hours then it's gone.
Can't say it changed my life other than a minor adjustment to have to take shots 3 X week. Life still goes on as normal...My new normal that is.

Well put, `` my new normal life``
I hope that the flu like symptoms go away soon for u..

I've been on Rebif a few years. Like Reply #4 and #6, if I don't pre-medicate with something like Ibuprofen, I'll feel some flu symptoms.

I'm considering talking to a naturopath about other forms of treatment but I've got a lot of research to do yet.

I have been on rebuff for years and although I don't have any new lesions, I have progressed from relapsing-remitting to chronic-progressive. For the last six months the injection has caused the inability to walk or stand, regardless of what I take before hand. I have even tried only injecting half the dosage. The doctor said "That shouldn't happen." Duh! Ya think!! I don't know what else to do.

I was on Rebif for a while. I am on Avonex now, much better customer service for me at least.

But it definitely helps to take a ibuprofen or Tylenol beforehand.

Also, Rebif didn't tell me at the time, but now I have a lot of scar tissue from the shots from the subcutaneous shots. With Avonex I don't get them (the nurse tells me because it is in the muscle).

Ask Rebif about preparing for the scar tissue because back when I was on it they didn't tell me a thing about it (guess it was too new and they didn't know shit). But probably slowed the progress of MS.

Good luck. The flu stuff will get better and easier and easier. Think of it as putting the stops on this disease and it makes taking the shots a lot easier.