Multiple Sclerosis (MS) Support Group

Yes, "LDN is for all of the xxMS varients" but anyone who takes it (and I do) should know that it is not proven to reduce the chance of having an exacerbation. Copaxone is that drug for me. There is lots of 'anecdotal' evidence supporting LDN but no 'official' study to that effect.

If the 'chronic disease' fund didn't pay for my Copaxone, I'd be really happy to have LDN but I think anyone who does take it must admit to themselves that to take LDN instead of Copaxone (or any of the Interferons) you are choosing to not use a drug proven to reduce your chance of having an exacerbation in favor of one that only has a lot of 'anecdotal' evidence to that effect.

Larry

Copaxone hasn't PROVED to reduce attacks, Either.

LDN has PROVED it to me.

I was having ANNUAL attacks from 1991-2002, 10 attacks in 11 years. I had an attack in 1988, 1986, 1981.

Started LDN 4/17/03.

Have had ZERO attacks since.

The clinical trials on any of the meds show 33%, same as placebo and prove nothing.

Copaxone is also tested for Every Other Day shots, but they can't tell their patients because they'd lose half the money. In order to get approval for every other day, they'd have to add an intert ingredient and double the price.

I have all the medical proof I need for me.

MRI's 8/04 and 4/07 show NO PROGRESSION.

My Cervical & Thoracic MRIs in 2002 showed C5 lesions and T5 sclerosis. My 4/07 C & T MRIs show C5 & T5 CLEAN, Healed.

My 10/2004 Staph infection is medically documented by a 23 yr practicing podiatrist showing a reverse and retreat within 48 hours of introducing an antibiotic, Levaquin. Unprecidented in his practice and experience.

My Allergy testing from 2/2003 (2 months before LDN) have a long list of food allergies. My allergy testing from 9/07 show NO food allergies. My external allergies are basically the same.

If you're in the LDN Yahoo grup you'd see people on LDN ALONE for LOTS of diseases, MS is now a MINORITY.

My Dad was DX with Stomach Cancer in the end of March. We got him on LDN 3/28. CT Scan 2 weeks ago showed the mass SHRUNK.

My brother is on it for sarcoidosis.

Brenda, the woman running the LDN conference in Nashville this weekend is on it for CPMS, 4 years now. Her mother was DX with breast cancer, ONLY taking LDN. Her grandmother is on it for cancer and altzheimers.

Copaxone adds complications unnecessary. Some people have permanent leg indentations and necrosis.

Any disclaimers are just that, disclaimers.

The proof is in the pudding.

I think I'm going to add this to my journal.

http://www.larrygc.com/mystory is My full story

My best an most effective ms alternative 'fix' is something called glyconutrients. Very good positive effects for me.

Lorna

I tried glyconutrients and all I could say was that it lightened my wallet.

Larry

The only thing that is the same for people with MS is the way we spell MS. Just educate yourself and try different things until you get something YOU like. good luck.