What is Multiple Sclerosis MS

Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...

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How do you cope with MS
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I have been dealing with MS for eight yrs. I am a single parent and I feel alone. I was recently told I have another lesion and I don't have family support or support of my friends anymore. I wish that I could die sometimes but if it wasn't for my son I probably would have done it long ago. I feel depressed and angry. I am overweight now due to medications from depression and I am bruised all on my body from the MS shots that I received. I don't know what to do. I can't participate in activities cause I can't walk far and plus place won't accept me because I'm not a senior citizen yet to participate in activities. Plus they don't have social/womens groups available in my area during the day except for new mothers club. Please help. No bingo games either or knitting/quilting classes or ceramic classes.
Posted on 10/29/09, 08:10 pm
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Reply #1 - 10/29/09  9:11pm
" I really do not know if this will help you, but when I first was dignosed with proggesive MS I did not have a lot of support either. I only have my husband who is in Edmonton, Canada and I am in Quebec. I bought a eliptical exericse machine and do only what I can because I have a hard time walking as well. I sometimes only exersice like 5 minutes a day and then have to stop because I am in pain. As for support groups, I do not have any either where I live, everyone is french here. I just try to keep myself busy and try not to feel sorry for myself. I did feel sorry for myself at first and gave it a month and then broke out of the shell and became strong again. Just have some hope and maybe you will pull through it and gaining weight is understandable, I eat when I have problems, I just try to eat something really healthy now. Hope I helped a little, if you need a friend, I will except you. "
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Reply #2 - 10/30/09  6:37am
" I am sorry to hear you are so alone & struggling. I am glad you keep going for your son too. 8 years is a long time & being told you have another lesion can be scary, I would not dwell on that as some people have a lot of lesions & not all lesions mean a lot more issues or disability.
being overweight is not something you can avoid as medications do that regardless. I have tried to drink a lot of water, esp when hungry then eat a piece of fruit or nuts or yogurt so that it is not as bad for you.
As for support groups, I have been fortunate that there is one where I go to physio, we stay after & have a coffee & chat.
If you dont have that option are you a mbr of the ms society for your area? They may be able to link you up with someone either to meet & talk or on the phone which could help you deal with some of the issues, if not even someone from there.
You said you have trouble walking, do you still drive? If not why not try to get a mobility scooter, the freedom they give is great once you get used to them. Also do you use a walker or other aids to help you walk. I use the walker & it help me get around & also I always have a seat when I need it.
Even just to get out for a ride in the fresh air on a scooter gives a great sence of freedom I find.
I cant suggest any groups as it is all different there to here of course. Do you have any hobbies or something you would like to do that you could get to a club or course to learn/do it more. That way you are mixing with other people not only ms people.
Just trying to throw some idfeas out there for you. Hope something from it helps you too.
Main thing is remember "I may have ms but ms does not have & define me" that helps me to cope with a lot of the challenges.
If you want to add me as a friend please do so & then you will be able to read my journals too if you want to.
Take care of yourself, be kind to yourself too.
Hugs "
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Reply #3 - 10/30/09  8:03am
" I am so sorry what you are going thru. I have had ms now since 2001 and I have had really bad times and thoguht about wanting just to be done, I was covered in bruises from falling 2-3 times aday. Started using a walker, still fell, ending up having to be in a wheelchair cuz I have no balance.

Neuro started my on Tysabri ( once a month IV ) doing much better still in a wheelchair but have started walking a little so far. Have not fell in almost 5 months now. wooowhoo!

Try to stay strong for your child-and for yourself. You always have us to vent to(website). Same with me I will accept you asa friend also. "
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Reply #4 - 10/30/09  8:07pm
" i know exactly how you feel alethia, i am going on 3 years and am in my 2nd relapse which now is making the dx more real and i am so depressed i am a single mom as well. i understand where your coming from. this absolutley does suck hope it gets better soon. take care and god bless you. "
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Reply #5 - 10/31/09  12:17am
" The only advice I can give you is, eat well balanced meals, go to sleep at a decent hour and make sure to keep waking up every morning. As far as the MS is concerned......Hang in there. (((((alethia))))) "

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