What is Multiple Sclerosis MS

Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Advice:
Suggestions on which meds 1st
Watch this 
View More Posts Ignore
Okay, here goes. Just came back from the neuro yesterday. My decision on which of the 4 drugs to start injecting. No opinion expressed from him as to which would be best. I am RRMS that has symptoms that are limited to sensory at this point. 10 lesions in brain/C/T spine (mostly old damage over past 9 years.) Very limited symptoms right now. I plan on trying many of the alternative treatments in the future but want to go on one of the drugs while I am researching and trying to find the best plan for myself. Any opinions are appreciated. Thanks.
Dee
Posted on 09/25/09, 12:09 pm
6 Replies Add Your Advice
Reminder: This is a support group for Multiple Sclerosis (MS). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Advice:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 09/25/09  12:26pm
" Check this thread out......everyone is using the one that they feel is best...so you will get many conflicted responses in which one is the best as you will see in this thread...

http://www.dailystrength.org/c/Mul...

And just my personal opinion, remember it is all personal opinions....
is this thread

http://www.dailystrength.org/c/Mul...

Are you thinking of having a child in the next few years because that makes a difference in your selection. "
View More Posts Ignore
Reply #2 - 09/26/09  7:57am
" It's all really trial and error. You start on one and see if it works for you. If it does GREAT! If not, you switch to another one. I started on Avonex. It stopped working for me, so, I switched to Rebif. I had to many side effects. So, I switched to Copaxone. It seems to be working better for me than the Interferons. However, I know many people who think the Interferon drugs are the best. So, it all comes down to what works for you. You really won't know until you try one. Which one? Think of your personal schedule, lifestyle, etc. How are you comfortable injecting? Once a week with a bare needle? More often with a choice of bare needles or an Autoinjector device? These are things you need to decide for yourself. Good luck and remember if one doesn't work, you can always go to another. "
View More Posts Ignore
Reply #3 - 09/26/09  11:55am
" The interferons worked well for me for three years and then they stopped working. I read this is fairly common. "
View More Posts Ignore
Reply #4 - 09/26/09  12:19pm
" I've used Betaseron for years and years. It's been good so far based on my MRI results, and the fact I still feel fine, no relapse. Have you checked each drugs web sites out?

nnyl1 was correct, you're just getting opinions from other patients here, not doctors. Nobody here is an expert.

Good luck to you! "
View More Posts Ignore
Reply #5 - 09/29/09  9:02am
" i've used Avonex for 13 years and it works well for me. the important thing to do is stay regular with what you choose, don't miss a dose. i know a lot of people don't like the needle that comes with Avonex. it is 1 1/4" long. but, lucky me i have never felt it. the big plus to me was you take the shot only once a week. and you can buy a 1" needle at your pharmacy. some pharmacies want a prescription from your doc, but you can get that. just ask. my pharmacy and walmart sells them over the counter because of the "clean needle act" by the government. it depends on the pharmacy, but the gov. made it legal, i think cause of drug users sharing needles and spreading disease. now, the smaller the needle, the more i feel. i take 2 "tylenol arthritis formula" just before the shot and when my body wakes me up aching, i take two more. the bad side effects left after a couple months, but, i still feel effects from my shot for a short time. i take it late evening and sleep thru it all.

"good luck" with what you and your neuro decide on, most of them leave the choice up to you. also, Avonex is proven to slow down relapses and progression of disability by 30% by the FDA. "
View More Posts Ignore
Reply #6 - 09/29/09  9:04am
" i forgot - the most important thing is to get on a therapy "as soon as possible" !!! "

Add Your Advice
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil