What is Multiple Myeloma

Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...

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My mum was diagnosed with MM in March and started chemo the following month,which made her so ill and she has just spent 11 weeks out of 12 in hospital with every infection going including msr c-diff a severe water infection , and thrush in the throat and mouth, we thought we were going to lose her as she started to get renal failure as well. But she got over all that and has come home but has decided not to have any more treatment apart from palative care and does not want to go back into hospital the doctors have given her 6 months to live which she has come to terms with. all she now wants is to die at home peacefully and without pain. I am her daughter and have moved in with her to look after her as she is not strong enough to look after her self and we didn't want her to have to go into a home.
What will happen now how does Myloma kill you. There doesn't seem to be any information on this.
Posted on 08/19/09, 05:08 pm
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Reply #1 - 08/19/09  6:58pm
" Most people succumb to infection, pneumonia and similar. "
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Reply #2 - 08/24/09  2:16pm
" Hi,

My mom was diagnosed March 26, 2008 with MM and she tried 3 different chemotherapies, with little or no improvement. She passed away one year and two days after being diagnosed. She went into the hospital for blood transfusions, the 1st afternoon in, she got pulmonary edema, a serious respiratory problem & was transferred from a regular unit to the ICU. That was on Monday, by Friday (she slept all day on Fri.) she spiked a temp of 103 at 2 AM Saturday morning. She had gotten Septecemia and due to the myeloma increasing in her system, she just didn't have the immunity to fight off the Septecemia (it's a systemic infection that can be fatal). My mother died that Saturday afternoon. She never woke up from Fri. night. I also moved in with my Mom to take care of her. I hope that this has been a help to you. Please write back & I'll give you my home email address also it is KES29@verizon.net.
I will keep you in my prayers.

Kathleen "
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Reply #3 - 08/29/09  6:48am
" Dear Kathleen
Sorry to hear about your Mom.
Mum has just recieved another transfusion her blood levels had dropped to 6.3.
She has been told if she wishes to stop the transfusions she would quite probably die peacefully with medication to ease any breathlessness. She is now struggling to make a decision about continuing recieving blood or to stop and slip away peacefully.
She has only been given about 6 months. And is finding each day harder. "
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Reply #4 - 09/22/09  2:57am
" Mum died on sept 9th at home a very peacefully. "
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Reply #5 - 09/27/09  11:29pm
" She went peacefully. That's what we all want. Just know she is with you always. Bless you, Sarah "
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Reply #6 - 09/28/09  3:24am
" sorry to hear that your mom passed away Jenand, but glad to know that it was peacefully. This is what we all wish, and she was blessed to have you by her side. I do hope that she didn't suffer with pain at the end, for that is one of the worries that I have. My doctor has assured me that this won't be the case, but until.... who knows. I've had myeloma for 6 years now, and have finally started living each day without the thought that I am going to die, sooner rather than later. I feel for you, but am glad that you were able to be with your mom at the end of her life and that she was not alone. I hope that your memories will be happy ones and the sorrow of these past few weeks will surely fade. Best wishes always, Cath "
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Reply #7 - 10/02/09  11:03am
" I lost my mom to cancer 9 years ago. You never get over it but it gets easier as time goes by. Just know that you did all you could do for your mom. If you want to talk you can email me at littlebit1961@hotmail.com. My prayers and thoughts are with you and your family/ "

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