Multiple Myeloma Support Group

Make the call, the doc will likely prescribe neurontin and lower his dose of Velcade.

But what side effects do neurontin have? He's soo against being goofy. Although, come to think of it, it might do him some good to loopy for a little while.. He's such a hard case. I'll call the doc in the morning and see what they say. Dex is starting again on Monday as well as chemo and he's not feeling well now. Don't know what I'm going to do with him. I guess I should remind him to breathe......

Nevermind, I just looked it up and it might just be the ticket! Thanks for the advice, you're awesome.

Every treatment involves compromise, a perfect nervous system isn't worth much in a corpse so you might have to tolerate side effects and damage including a little neuropathy but there is no reason to have it ruin quality of life when adjustments can be made.
So far my velcade/cytoxan/melphalan caused neuropathy has not gone beyond sensory and has not made me clumsy but it is wierd taking off you shoes to verify that your socks didn't bunch up because it sure feels that way. A little in a few fingers on each hand which almost feel like I have been pulling nettles whie weeding.
Eventually we all die of something but I am far more concerned with quality over quantity, give me good months , years, or decades and I'll jump through unpleasant medical hoops in trade.

Hi,
I just joined the support group because I also can not stand the pain in my feet and ankles. I have had this problem for two years.
I did see a specialist neurology and he diagnose that aa3 our of my four main nerves running down my legs were very damaged due to the drugs for the chemo. I get relieve by my husband messaging them daily or going in a hot bath or jacuzzi.
I am on lyrica for my pain management and a pain patch.
I am turning 49 years old tomorrow. I am a female.

Oh, how miserable you must have been/are. My husband is the one with the cancer and neuropathy. He refuses to take any more meds than absolutely necessary. He's stubborn. We don't have access to a jacuzzi and he wouldn't cooperate right now. He's too depressed. Going thru a rough patch right now.

IF you somehow talk your husband into trying xanax, that might really help with his depression. It has enabled me to function and I have absolutely no loopiness.
I'm just a rookie at this MM so take my advice with a grain of salt.

He has a prescription but it takes an "act of congress" to get him to take it. I have been taking it too, at night to help me sleep. I wish I could shove it down his throat but, that's not an option. I'm just praying the lexapro will do it's job. That he will take. Go figure.

Hello, I'm new to the group but I first go neropathy at the end of my Velcade treatments. Still have it and that was back in 2007 although not as bad as it once was, mostly still in my feet and I just don't have the dexterity I once did. I took neurontin, only problem I had with it was I'd have to give myself 10 hours to sleep, boy that stuff nocked me out. So I don't take it much anymore, maybe if I've been out all day walking or after softball, otherwise the best thing I did was have them cut back the Velcade at the end and try to keep active that seams to help the nerve endings repairing themselves.

Thanks, my husband still has issues with the neuropathy. He won't take anything that makes him "loopy". He's a hard case, my friend. Neither does he have the energy to be active at this junction. Someday, I hope that will change. Lately, I've had enough energy for the both of us. Be careful of what you ask for. I asked for strength and energy and got the mother load! Ugh.