What is Multiple Myeloma

Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...

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MY MOM PASSED AWAY
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MY MOM WAS DIAGNOSED ON MARCH 26, 2008 with Multiple Myeloma and passed away on March 28, 2009, she was just 72 years old. She tried Melphalan, Revlimid/Dex, and Velcade. She did not respond, or responded just a little to the Velcade, but not the rest.
She was everything to me. She raised me and my 2 brothers all by herself and she was a great mom.
My heart is broken and I miss her. My only consolation is that she is not suffering and is with the Lord and in peace.
If anyone else knows of someone who had a similar experience to my mom's I'd like to hear about it.
Thanks for all your support on this web site.

Kathleen
Posted on 04/24/09, 11:04 am
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Reply #1 - 05/08/09  10:21am
" I am sorry to hear about your mom. I know how you feel. I lost my wife back in december to MM. I know that I must move on, but a big part of my life is missing. We had known each other for six years, but we wereonly married for 2.5 years. Marissa was diagnosed in Feb 07, and passed away on Dec 8 200. It sounds like you have gone through the same kinds of things I went through. We never even had a change to try and have a child. We were just starting to enjoy being married, when this took place. Keep the fath. I know it's hard. Now my dad is haveing some health issues.

this is a great site. Check it often for support.

Kevin "
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Reply #2 - 05/18/09  12:40pm
" KEVIN,
THANK YOU FOR RESPONDING. I ALSO SENT YOU A NOTE TO YOUR POST HERE ON DAILY STRENGTH, I GUESS I'M NOT SURE HOW THESE BLOGS ARE SUPPOSED TO WORK. ANYWAY, I AM SO VERY SORRY ABOUT YOUR WIFE PASSING. HOW OLD WAS YOUR WIFE WHEN SHE PASSED? WHAT KINDS OF CHEMO DID SHE TRY? PLEASE WRITE BACK WHEN YOU CAN.

KATHLEEN "
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Reply #3 - 06/23/09  9:48am
" Kathleen: I am so sorry to hear about your Mom. If it is any consolation, I can relate to your pain. My sister recently passed away from MM. She suffered with it for almost 4 years and was 54 years old when she passed away. My sister Kathy tried all of the drugs you mentioned that your mom did. She also had a stem cell transplant early on which put her into remission for only 18 months. After her relapse she did chemo for 96 hours straight at least 4 or 5 times. Unfortunately nothing seemed to work. She even tried a clinical trial which did bring her myeloma count down but it was short lived. I've lost friends in the past as well as my father but the pain of losing my sister was incredible. If you ever want a shoulder to cry on....let me know. I do a lot of that lately. Kim "
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Reply #4 - 06/24/09  2:38pm
" There are cytogenic abnormalities on the C13 , C14 chromosome that indicate a very poor prognosis with myeloma poor response to treatment and a survival of about one year.
After the initial panic at being diagnosed it was one of the first questions I had for my oncologist.
Mom will live on for a very long time in the hearts of her loved ones. "
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Reply #5 - 07/01/09  2:10pm
" No sure exactly what type of chemo drugs my fiance took but he suffered from MM for 3 years. He would have been 49 years this November but won't be able to. My heart goes out to those who have experience this and/or know of someone that has. Like myself, I am a survivor of Non-Hodgkins = 10 years now but I prayed to God to allow my sweetie to have the same fate. I'm not mad I'm just confused. It's going to be really heard living without him. I just can't believe it. May God bless you all. "

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